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Posted: Fri Jul 30, 2010 6:07 am
by kjwxau
The UB study is NOT being done by IR's but by neurosurgeons. Are they the bridge between our MS Drs and IR's?
Posted: Sat Jul 31, 2010 1:43 pm
by Cece
Kirsty Duncan, a Canadian politician, attended the Dr. Sclafani symposium as well:
Flying home from a conference on Multiple Sclerosis (MS) in New York this week, I couldn’t shake two memories.
The first was one patient’s words after receiving “liberation” treatment: “In general, I feel that I’m healing instead of just continuing to fail.” The second was a doctor’s plea: “I have eighty patients on an excel spreadsheet, they are desperate, and I want to help.”
Our party supports funding research for MS for all forms of treatment – including research into liberation treatment.
Liberation treatment is a cutting-edge therapy for MS patients thought to be suffering from chronic cerebrospinal venous insufficiency (CCSVI), a narrowing or blockage of veins in the neck which drain blood from the brain, that may trigger MS symptoms.
One researcher, Dr. Salvi of Italy told the other doctors in attendance — leading researchers from Bulgaria, Italy, Kuwait, and the United States — that you “don’t have to treat many to understand that something positive happens to these patients.”
It was an encouraging note amid a wider discussion on making rapidly-evolving science available, managing patient expectations, and the importance of developing a registry to capture pre-operative and post-operative data, and promote more published research.
more here:
http://www.liberal.ca/newsroom/blog/new ... sclerosis/
Posted: Sun Aug 01, 2010 10:33 am
by vivavie
Anybody knows if their was some Canadian doctors attending. No names, just want to know if there is hope that we will in the game on day or if we will be far far behind.....
Posted: Sun Aug 01, 2010 11:33 am
by L
vivavie wrote:Anybody knows if their was some Canadian doctors attending. No names, just want to know if there is hope that we will in the game on day or if we will be far far behind.....
I think that you're winning right now, what with Saskatchewan funding trials!
Posted: Sun Aug 01, 2010 12:56 pm
by vivavie
Yes and no L, isn't there clinics opening or in the process in England??
I was hoping for doctors interested to start treating! or at least able to do the follow up!!!
I had a cold shower when I went for a Doppler in Montreal recently, they said they are not finding the same percentage as Zamboni. The tech said they have a better method!?!??
That's why I was hoping for canadian and/or Quebec attendee!
Posted: Mon Aug 02, 2010 3:46 pm
by NormB
It is great news for Saskatchewan MS'ers but I wonder if they have many IRs that got proper training much the same as Dr McDonald and his staff have received by going to Ferarra.
If they did perhaps we should go and rent a lake view cottage there for a year, long enough to apply for a Sask health card.
Take Care All
Norm
Posted: Mon Aug 02, 2010 4:36 pm
by 1eye
vivavie wrote:Yes and no L, isn't there clinics opening or in the process in England??
I was hoping for doctors interested to start treating! or at least able to do the follow up!!!
I had a cold shower when I went for a Doppler in Montreal recently, they said they are not finding the same percentage as Zamboni. The tech said they have a better method!?!??
That's why I was hoping for canadian and/or Quebec attendee!
I posted about this earlier today.
Their "better method" was not allowed in the Zamboni method. It involves using the Valsalva maneuver extensively. It's like it was designed to fail. The maneuver inflates the stenoses but that is very temporary and not typical of the operation of your veins, unless you hold your nose all the time. I have seen pressure measurements done by measuring just at a specific point in recovery from Valsalva, but I wouldn't think it would help at all -- in fact it seems counter-productive, to use it in CCSVI testing. It hides stenoses.