CCSVI UK
Posted: Thu Aug 05, 2010 5:25 am
Hello all,
If anyone knows of any vascular surgeons in the UK that are prepared to (and know how to) scan/ veno correctly for CCSVI I'd really appreciate a PM. If they can do the procedure even better but I know thats unlikely presently....I can be discrete if advised to be
I know I have the alternatives of going abroad, and there is the Essential Health Clinic waiting list (which I am on) but they advise they wont be able to see me until early next year, I have gone downhill these past few weeks and dont want to have to wait that long if I can help it.
I was also looking into the idea of giving blood to (possibly) ease symptoms but we cant give blood if we have MS can we? Is there anywhere you can go to have the blood removed even if wont be used by another patient?
My neuro wont even give ccsvi the time of day, its all poppycock to him, if there is even 1% chance that this can help me I will grab it with both hands, why cant these people understand that, whats the alternative stick me in a dark room with a bunch of anti depressants....I would give them such a hell of a fight if I got better or stopped progressing....
Any help appreciated all
Thankyou
James
If anyone knows of any vascular surgeons in the UK that are prepared to (and know how to) scan/ veno correctly for CCSVI I'd really appreciate a PM. If they can do the procedure even better but I know thats unlikely presently....I can be discrete if advised to be
I know I have the alternatives of going abroad, and there is the Essential Health Clinic waiting list (which I am on) but they advise they wont be able to see me until early next year, I have gone downhill these past few weeks and dont want to have to wait that long if I can help it.
I was also looking into the idea of giving blood to (possibly) ease symptoms but we cant give blood if we have MS can we? Is there anywhere you can go to have the blood removed even if wont be used by another patient?
My neuro wont even give ccsvi the time of day, its all poppycock to him, if there is even 1% chance that this can help me I will grab it with both hands, why cant these people understand that, whats the alternative stick me in a dark room with a bunch of anti depressants....I would give them such a hell of a fight if I got better or stopped progressing....
Any help appreciated all
Thankyou
James