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Social media drives Multiple Sclerosis controversy
Posted: Wed Aug 11, 2010 12:34 am
by MSUK
Feeds acrimony over liberation treatment, but also forces researchers to respond.
A controversial treatment that promises relief from the daily torment of multiple sclerosis has created a deep rift between its proponents and those who say it doesn't work.
Helping drive the controversy is social media, where it can be difficult for people to determine the truth.... Read More -
http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954
Posted: Wed Aug 11, 2010 1:09 am
by sbr487
Some gems:
"Physicians can't honestly say this doesn't work because if you hold them to their own standards, they have no evidence to say it doesn't work," Leier said.
"Premier Wall in Saskatchewan made an excellent decision to fund clinical trials," he said. "I think that was politically ingenious on his part. But it was also a very humane gesture as well."
"You don't get that balance of testimony," he said. "Negative findings are just as important as positive findings, but negative findings have always been historically under-represented in publications."
Posted: Wed Aug 11, 2010 9:05 am
by Cece
Great quotes.
"You don't get that balance of testimony," he said. "Negative findings are just as important as positive findings, but negative findings have always been historically under-represented in publications."
This makes me glad we have pklittle's thread, for non-results or worsening results or slow results, because we need both sides of the picture. (And I hope as the doctors increase their skill, the results will improve as well.)