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ccsvi tracking website

Posted: Sun Aug 22, 2010 10:52 pm
by Cece
Anyone know anything about this site? Or want to add your data to it? I'd be interested in seeing the "aggregated graphs" once they are available.

http://www.ccsvi-tracking.com/index.php

Posted: Sun Aug 22, 2010 11:10 pm
by CureIous
Oh great, yet another internet site by an anonymous source that wants all of our information inputted. Do we have any idea who started this site?

Posted: Mon Aug 23, 2010 8:47 am
by Frank
The improvement found after treating CCSVI in patients who also suffered from multiple sclerosis led Fondazione Hilarescere to establish an international cooperation with the BNAC of the Marc Jacobs Neurological Institute, New York State University and to promote the dissemination of all these discoveries in the national and international scientific community (Cenaculum Studiorum, Bologna, 8 September 2009). In line with the meaning of the word hilarescere(in Latin: make cheerful, joyful), all the experts involved in these efforts intend to bring back a smile on the face of those who suffer from diseases for which there is no clear explanation or treatment, yet.
I think the site was initiated by:
http://www.fondazionehilarescere.org/eng/

as "stated" here:
http://www.ccsvi-tracking.com/_CCSVI.php

--Frank

Posted: Mon Aug 23, 2010 9:26 am
by CureIous
Thanks, I wish they would make it a little easier to find that BEFORE signing up. Some of us long time net'ers are a bit wary of insta-input.

M.