This Is MS Multiple Sclerosis Knowledge & Support Community

concerned wrote:Floatation devices can be clearly demonstrated to save lives. With 'Liberation' would be a little more difficult to show life saving potentital, and I don't mean like "oh, billy, your a life saver!!!"

Can you honestly say that all these drugs are life saving... take tysrbi for instance, is it life saving, in fact ALL MS drugs are just there tohelp with symptoms not LIFE SAVING yet they all get thrown on the market and in some cases fast tracked.... So why does the liberation treatment have to be LIFE SAVING, if it helps with the symptoms and raises a persons quality of life, to them that is LIFE SAVING enough

a) I never said those drugs are life saving.
b) I never said 'liberation' had to be life saving to be useful.
c) someone else brought up life saving in relation to compassionate use of 'liberation' and I was responding to them.

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gotta love this dialogue. I am one who is just this side of EDSS 10 (the scale doesn't go higher than 10 so I guess that means......) and I would like the opportunity to choose or refuse service. I'm trying to find some one to try a "Liberation" on me. I will hope and I can try. Right?

ppicklee wrote:gotta love this dialogue. I am one who is just this side of EDSS 10 (the scale doesn't go higher than 10 so I guess that means......) and I would like the opportunity to choose or refuse service. I'm trying to find some one to try a "Liberation" on me. I will hope and I can try. Right?

ppicklee .. love your name ..
you are RIGHT!
I pray that someone wayyyy wayyyy more important than me is reading your post and I will fight and pray for your right to choose.
Thank you,
pCakes

ppicklee wrote:gotta love this dialogue. I am one who is just this side of EDSS 10 (the scale doesn't go higher than 10 so I guess that means......) and I would like the opportunity to choose or refuse service. I'm trying to find some one to try a "Liberation" on me. I will hope and I can try. Right?

ppicklee, it's people like you that need this to be attempted YESTERDAY !
I am EDSS 7.0 and was only diagnosed in May 2008. I'm galloping to my 10 but I don't dwell on it. I am certainly not in a position to wait until it's available here in Canada. I owe it to my family , friends and myself to try this asap.
At least I can afford to have the testing and treatment but thousands of Canadians can't.
I will also fight for your opportunity to get the procedure - if indicated.
Good luck.
The dude who wrote that opinion in this post is in a position of Chair of a Canadian Research group and no doubt shares all the same biases as those on the CIHR and MS society brass. gl ppicklee

frodo,
you tickle my funny bone! and boy, I needed that tonight.
elyse

ppicklee,
i'm praying for a light to go on in the currently unlit mind of the right person of power in time for help for you. i'm also praying for your strength to get through the days and nights until then.
garyak, prayers for your struggle too.
elyse

The article raises three questions.
on the availability of budget: non-sense argument. you have to judge the case on its merits, there is enough money for good cases
on the ethics ie the absense of scientific proof of the biological link between CCSVI and MS: is non-sense; you can not plausibly deny.
support from provincial governments legitimize this currently questionable technique in the eyes of desperate patients, thus helping to buttress a market for the less reputable clinics throughout the world that are offering the treatment, often at a hefty price? you can look at this the other way around too: how responsible is the position of authorities, knowing that angioplasty is very often not a one-fix thing?

concerned wrote:

thornyrose76 wrote:

concerned wrote:
Where has it been shown to have lifesaving potential beyond anecdotal reports?

There have been numerous videos posted online givingproof of it's benefit, do a little bit of research, watch it . Yeah there are some that show not much if any improvement, while others it is obvious, and it is hardly placebo effect. You are hardly concerned about any MS sufferer if you are so quick to pan the theory.

What about videos of people showing improvements after faith healing? Should the government pay for that too?

Also, I am concerned about my mother, which is why I'm feeding her right now.

Faith healing..hhm, right. How are you able to feed your mother and type at the same time?

Who has time for this? Geez, good luck.

My mother has to take breaks from eating and recline in her wheelchair.