Posted: Fri Sep 24, 2010 12:12 pm
best to you Gary and your family..... wishing you all the best
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The field of players in the tourney had no idea I would normally get 10-11 hours of sleep per night when at home and any activity would drain my energy significantly. For the ten days I was down there I averaged about 5 hours of sleep per night and played poker for about 12 hours per day . Usually got to sleep around 3-4 am and woke up at 9-930 every morning to start all over again.AJB86 wrote:Hey Gary, while I was checking for updates on CCSVI last night I was also watching the WSOP and as I read this thread I realized you were on my T.V. Crazy coincidence! i am a 24 yr old from Jasper with pretty aggresive MS. I am hoping to get CCsVI treatent soon and playing in the World Series is on my bucket list too. Congrats on your improvements!Congrats on the solid finsh! And thnks for showing me that despite MS its still possible to schieve my Dreams!
yes any questions via pm are cool. The catheter venogram is what found my vein narrowing not the doppler and not the mrv. I haven't started all the nutritional supplements yet. I decided once on both testing lists to just pay all the fees and have 2 different opinions at Hubbard and BNAC. This allowed me to comment to pwms what each center's experience was like. I think I can get down to Hubbard on fairly short norice if I think I am restenosing. I have gone slightly backwards this last week so if this slide continues I will head back down there.dlb wrote:Hello Gary,
Have your improvements continued or held up so far?
I have a question - you posted that you had been to BNAC for testing and of course the Hubbard fMRI. Was that a timing thing & you just followed through with both appointments or were you more interested in the results from the different protocols (basically Zamboni protocol with Doppler ultrasound plus the Haacke protocol with fMRI)?? Or am I misunderstanding completely.
(copied from your post on Dr Embry's post about his son's trip to Poland )- I too was found to have very little that was wrong show up on my doppler and mrv's. Not until the catheter venogram was done that significant blockage of my rt IJV was found and succcessfuly ballooned.(end of your quote).
So I'm basically wondering if you felt more info was gained at BNAC or at San Diego or nothing was as helpful as the catheter venogram?
Are you just going to be seeking follow-up with your neuro or do you go back to San Diego for follow-up? Did you talk about the possibility of re-stenosis with Dr. Hubbard &/or the Del Mar clinic? specifically, do you have to get back on their px list & start over or do they see you in a different light as an existing patient? Dr. Hubbard has a list of supplements that they have suggested - did they talk with you about that, post procedure? Can I ask some other questions by PM?
Thanks for your time! I hope you continue to do very well!
pocket tens is a slight favorite over ace k so I would definately go allin vs ace k. My bustout hand was ten ten vs KK which, in my severe fatigued state, was a mistake which I got trapped into . Was best week of my life and was a great opportunity to bring some attention to MS. espn did a great job. I have reached local celeb status over all the espn/tsn coverage over the last 3 weeks. I will give a 1 month update next week.Jugular wrote:Hey garyak, I think I caught you last night on TSN. I wasn't watching for you as I wasn't aware of this thread. I left TSN on because I was watching MNF earlier.
My question for you is whether you would still go all in with pocket 10's against AK now that you've had your CCSVI treated?
These don't play for me .. do I need to sign up for pokertube for this to work?garyak wrote:for anyone interested in this weeks espn coverage of the wsop main event where I was able to bring some awareness to ms here are the two pokertube links
http://www.pokertube.com/free-poker-vid ... E_Ep14_1_2
http://www.pokertube.com/free-poker-vid ... E_Ep14_2_2
Hey I wasn't serious and obviiously wasn't paying close attention. If you had hit a ten, then you would have been a genius. I was in a tourney once and pushed all in early on pocket 10's and got pushed out by pocket aces.garyak wrote:pocket tens is a slight favorite over ace k so I would definately go allin vs ace k. My bustout hand was ten ten vs KK which, in my severe fatigued state, was a mistake which I got trapped into . Was best week of my life and was a great opportunity to bring some attention to MS. espn did a great job. I have reached local celeb status over all the espn/tsn coverage over the last 3 weeks. I will give a 1 month update next week.Jugular wrote:Hey garyak, I think I caught you last night on TSN. I wasn't watching for you as I wasn't aware of this thread. I left TSN on because I was watching MNF earlier.
My question for you is whether you would still go all in with pocket 10's against AK now that you've had your CCSVI treated?
This is why I think how PPMSers respond to the venoplasty procedure can teach us a lot. RR does not have a predictable course, your PP did. Glad to hear you're doing so well!!garyak wrote:I have had no deterioration in the last month which has never happened since my first MS symptoms started 3 years ago. Every 2-3 weeks I was noticeably worse since my first symptoms started.