Page 1 of 1
LDN and postliberation?
Posted: Thu Sep 23, 2010 7:15 am
by Nasti
Those of you who were on LDN before the liberation procedure, has anyone gone off it after the surgery? Any noticeable changes? I am still on it, kind of scared to go off it, though my energy level kind of elevated after the surgery...
I would appreciate any feedback
thnx
Posted: Thu Sep 23, 2010 7:20 am
by Thekla
I have stayed on it. I see no downside to it.
Posted: Thu Sep 23, 2010 7:58 am
by adamt
since starting 2mg LDN 2.5 years ago i havent got any worse - doses above 2mg made me worse and quicker than usual progression for some reason,
i was liberated last month and stayed on LDN, lucky i did as i think i have re-stenosed,
its not worth the risk of stopping LDN in my opinion
Stay on your drugs
Posted: Thu Sep 23, 2010 8:54 am
by MarkW
Please stay on your MS drugs after you are de-stenosed, especially if they are producing positive effects (follow Prof Z's advice). There is some logic for trying LDN after de-stenosis (say after 3 months) if you can get it easily.
Kind regards,
MarkW
Posted: Thu Sep 23, 2010 9:02 am
by Shueywho
Mark can you explain what the logic is for starting LDN after 3 months? My partner is having her procedure on Oct. 7th and is currently not on any dmd, but is considering going on LDN after. I would appreciate any insight you may have.
Thanks
Sheila
LDN helps some people - no logic as why
Posted: Thu Sep 23, 2010 9:20 am
by MarkW
Hello Sheila,
3 months was a guess in order to allow changes from de-stenosis changes to be observed first (remylination might be just starting at 3m). There is not much science known about how de-stenosis or LDN actually work in MS. Add in people variability and its guesswork not science.
Kind regards,
MarkW
Posted: Sat Sep 25, 2010 1:01 pm
by Nasti
I actually wanted to test the effects of CCSVI without the LDN, I know LDN works, I don't know about CCSVI... But, it seems it is not worth testing
thanx for the feedback
nasti