Posted: Tue Oct 26, 2010 12:58 pm
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True, but lack of proof it is true is not the same as proof it is not true... because it isn't proven does not seem to be a good reason to refuse to fund studies checking out whether it is true or not, and that is one of the things the Dr. said. I sympathize that there have been alot of off the wall theories proposed, and a specialist in the MS area is justified in being skeptical and cautious, but not dismissive in the way this article was.Lyon wrote:Not to be snotty but what is considered an open mind?thornyrose76 wrote:Is there one neuro out there that does have an open mind about CCSVI?
Of course one underfunded man (Zamboni) can't provide a water tight case at this early point but the burden of providing an argument that seems interesting and sensible enough to draw the interest of the rest of the medical community is up to him and other pro CCSVI people and he/they obviously haven't succeeded in that yet.
http://cmscfoundation.org/about-the-fou ... l-schapiroRandall T. Schapiro, MD
President, The Schapiro Multiple Sclerosis Advisory Group
Eagle, CO
... Following a short stint as a faculty member and director of the MS Clinic at the University of Minnesota he founded the first comprehensive MS Center in 1977, The Fairview MS Center, which was renamed, The Schapiro Center for Multiple Sclerosis at the Minneapolis Clinic of Neurology in 2004. In 2009 he retired from private practice to consult and advise about topics related to MS. He currently is the president of The Schapiro Multiple Sclerosis Advisory Group based in Eagle, CO. He was the first elected president of the Consortium of MS Centers, an organization which he helped found. He has participated in the development of the Heuga Center, a wellness center for MS based in Colorado and was given their “Can Do” award. Dr. Schapiro was awarded a Life Time Achievement Award by the Consortium of MS Centers in 2007. He has been elected to the National MS Society Hall of Fame and has served on numerous advisory committees for them including the Medical Advisory Board. He also serves on the International MS Society’s Medical Advisory Board. He served five years on the National Board of the National MS Society as well as serving his 32 years on the local board of the NMSS. He has lectured and written extensively on all topics associated with MS Management nationally and internationally. While he has participated in numerous research studies, he is best known for his use of humor to teach sensitive topics in both educational and patient management settings.
Dr. Schapiro was my darling man's neurologist when he lived in Minneapolis. When he asked him about LDN, he said he wouldn't prescribe it until clinical trials were done, and he said it was very expensive. I understood his feeling about clinical trials but he was very wrong about it being expensive.Cece wrote:He's retired from private practice now, but up until last year Dr. Schapiro was the head of the clinic I go to here in MN. I've always had respect for him, he has accomplished a lot. I guess I will excuse him on this one. It's hard to change one's way of thinking. I doubt he has seriously looked into the vascular research on CCSVI and MS, it's kneejerk dismissal, but he's still one of the good guys, just not one of our good guys.
But what is that knowledge? Certainly, they are experts in the observation of the "MS" disease process; whether a prescription drug might help (though; do they help?), which prescription? Some will prescribe drugs that have potentially deadly side effects, but they don't know whether the drug will cause the side effects, nor how severely.Maybe they do not accept CCSVI because of the knowledge they have accumulated though years of schooling,private practice, and research? It would have been nice if he would of laid out some specific reasons...Is there one neuro out there that does have an open mind about CCSVI?
I have no doubt that Dr. Schapiro knows neurology. He wouldn't have had the career in medicine that he had, if he didn't. But I remember one thing that my darling man told me after one of his appointments. He was explaining to the doctor the things that he was experiencing and the loss that he was feeling. He told me that the doctor patted him on the hand and told him to be happy with the things he was still able to do.MrSuccess wrote:thanks for providing the Bio , Cece .
make no doubt about it ..... Shapiro knows MS.
In addition to being a piss poor stand up comic ..... Shapiro needs to work on his shtick ...... making fun of someones name ..... is lame .
Now that Shapiro has made his move ..... he's fair game now ..... as is our beloved Dr. Freedman ....
Welcome to the Jungle ..... Dr. Shapiro
Poor old Shapiro can't be blamed for his long held beliefs and opinions .
Shapiro pre-dates MRI's and the information age - The Internet .
Poor old Shapiro must pine for the day's when his patients were at his mercy for their health information ......
Using text books older than dirt ..... Shapiro made a damn fine living providing unproven theories ..... to treat a medical condition that continues to baffle the most educated medical minds ... out there.
The smart ones say .... I'm not sure ...... let's look at this problem from another view ..... let's look at everything ..... what do you think about this ?
Those like Shapiro ....... are convinced they have the correct solutions .
Man ...... what an arrogant prick .
yes .... it takes one to know one
Mr. Success
Maybe. In the case of my neuro - possibly the same as ThornyRose's - although he has publicly denigrated CCSVI on more than one occasion, he has *not* in fact even read the key papers, nor has he bothered to, say, check to see if the "charlatans" he thinks are doing the treatment have ever published their results before suggesting they are frauds. And it's easy to be right arguing against your own imaginary straw man.Maybe they do not accept CCSVI because of the knowledge they have accumulated though years of schooling,private practice, and research?
The anecote about the hand-patting seems like it may have been an attempt at consolation that missed. This one bothered me more, it seems as if he was being deliberately misleading. It fits with him being opposed to alternative therapies, though.Trish317 wrote:When he asked him about LDN, he said he wouldn't prescribe it until clinical trials were done, and he said it was very expensive.
Dr. Steinman is one such example. I had read about his warning on Tsyabri and it was not surprising that he finds CCSVI interesting. And has plans to study it ... though its another issue that he might never be able to do it because of lack of funds. I am sure there are many such doctors who definitely have an open mind on CCSVI ...thornyrose76 wrote:Is there one neuro out there that does have an open mind about CCSVI?
I say ... Adios Shapiro .... don't let the door hit your ass on your way out .......
that was really funnyPerhaps Shapiro should confine himself to utterances such as 'I don't know' and 'Walking backwards to happiness'!