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While we have the privilege of debating minutae

Posted: Tue Nov 30, 2010 2:25 pm
by CureIous
Multiple sclerosis sufferer took his own life while on holiday.
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While it would admittedly be pure speculation, one can't help but wonder, if only some had heard there is a hope on the horizon, even a faint glimmer of light can overcome the deepest darkest tunnel.

Take note of his chief complaint and ponder. Heartbreaking, even more so ironic given his location.

Posted: Tue Nov 30, 2010 4:26 pm
by CureIous
after another read, note this:

"and was administering injections of a drug known as “copaxone” to help control the symptoms."

Wherever did he get the idea that a disease modification drug/progression drug would alleviate symptoms? My neuro never said a thing about the symptoms other than to avoid the heat.

Why do some neuros not just speak the truth plainly?
"I know your MS symptoms suck, big time, and you feel like crap, continue taking the shots regardless of how you feel, because those are to help mitigate inflammation/neurological damage, which can be happening whether you feel badly or not".

Mystified.

Posted: Tue Nov 30, 2010 5:21 pm
by Cece
It's tragic and yes I imagine that family is in for more pain in the next few years if CCSVI breaks big. All the what-ifs.

ccsvi

Posted: Wed Dec 01, 2010 12:59 am
by blossom
it's hard to touch on this. but, it is sadly a reality that i'd venture to say some here at tims have thought about doing this or have this kinda plan if things just get to a certain point. i have to admit i've had my thoughts.

but, thoughts are thoughts-carrying them out are a whole different ballgame. there is no coming back to change things. "it is final".

nobody can judge or know what any individual or their family is going through even though we all have ms each one of us owns our pain. nobody else does.

look at barb farrel, and some of the others. right now there is more real hope than there has ever been. will it be a reality for everyone of us-who knows? i sure hope. but, where there is life there is hope.

i just hope this guy is at peace in a better place and his family finds peace. my heart is very sad for him and his family.

Posted: Wed Dec 01, 2010 1:45 pm
by BooBear
There is a reason that MS sufferers are more likely to take their own lives than the general population. Doesn't help when we are prescribed medications that include depression and suicide as possible risk factors and adverse reactions.

My heart goes out to this patient and their family.