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November 30, 2010-my new birthday!

Posted: Fri Dec 03, 2010 5:04 pm
by rcb0407
CCSVI TRACKING [Please use date format MM/DD/YYYY]

MS HISTORY
Name : Robin
Male/Female: (F)
Age: 57

Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): May 13, 1995-RRMS

Lesion locations (most affected side, if known), number:equally distributed between brain and cord

MS treatments:Betaseron 6 years, Copaxone 3 years, LDN 3 years, tysabri 3+ years

MS symptoms before stenosis intervention:total numbness in hands (to Elbows) and feet (to knees); fatigue; cog fog (didn't know I had it till it was gone); bladder issues, severe back pain if standing more than 1-2 minutes; constantly cold hands and feet;cane from 1995-2010-walker from July til 11/30/2010

Number of relapses before intervention (if applicable):2

EDSS before CCSVI intervention (self-assessed or physician-assessed?):6 (physician)
[To review EDSS rating, click the following link: http://www.mult-sclerosis.org/expandedd ... scale.html ]

FSS before CCSVI intervention: 6.6
[To calculate FSS rating, click the following link: http://www.mult-sclerosis.org/fatigueseverityscale.html ]

MSIS before CCSVI intervention: 112
[To calculate MSIS rating , click the following link: http://healingpowernow.com/msis.htm ]

Are you using Inclined Bed Therapy I.B.T? (Y/N) N

Have you had testing (and possibly procedure) for blockage yet: (Y/N) Y
[Some patients may wish to start with a baseline report, if Y, continue with next section]

STENOSIS PROCEDURE HISTORY

Date/location of testing/procedure:Albany, NY 11/30/10

Type of venographic study: (MRV, Doppler) Doppler:Venogram

Diagnosis: Blocked jugulars-mild on right-moderate on left, and it was all twisty

Type of procedure: Balloon - no stent

Procedure/drug related symptoms: Slight discomfort on left side of neck; ibuprofen works

Number of relapses since first CCSVI intervention: 0

Impact on your MS symptoms in words (include date in brackets if there have been multiple updates): My hands and feet were warm in the reovery room immediately after; my numbness is decreasing day by day-I have feeling now; I AM WALKING UNAIDED FOR THE FIRST TIME SINCE 1995; balance is good; NO FATIGUE; seem to have had taste buds restored
EDSS as of this update (self-assessed or physician-assessed?)self-1.5

FSS as of this update: 3

MSIS as of this update: 40

I had no expectations going in; I just needed to know I had done everything humanly possible to fight this disease. I am still in shock-my daughters, mother, husband, and other relatives and friends are crying-I still don't believe it's real

Posted: Fri Dec 03, 2010 5:12 pm
by Cece
oh my - you got the miracle!!

hugs and happiness!!!

Posted: Fri Dec 03, 2010 5:15 pm
by CenterOfGravity
This is awesome to hear, I can sense the big huge smile on your face :).

Posted: Fri Dec 03, 2010 5:16 pm
by prairiegirl
Great to hear of your improvements! :D

Posted: Fri Dec 03, 2010 7:23 pm
by 1eye
Hippo birdie two ewes! Glad to hear you did so well. I am only 1 year younger than you! What'll we do? Now they'll all want one... :D

ccsvi

Posted: Fri Dec 03, 2010 8:53 pm
by blossom
great to hear. continued healing wishes sent your way.

Posted: Fri Dec 03, 2010 9:21 pm
by NotFound
I am crying too. So happy for you!

May you keep on improving!

Re: November 30, 2010-my new birthday!

Posted: Sat Dec 04, 2010 5:50 am
by bruce123
rcb0407 wrote: I had no expectations going in; I just needed to know I had done everything humanly possible to fight this disease.
Thanks for posting. This is the same approch my wife is using. I am so happy for you.

Bruce.

Posted: Sat Dec 04, 2010 6:07 am
by bluesky63
Down from 6 to 1.5 -- awesome!!!!

Interesting you said you didn't realize about the cog fog till it was gone. I think that is a great benefit and a real eye-opener -- to experience clarity and not realize you hadn't felt it because it had just been so normal to be "foggy." That crystal-clear feeling was amazing.

Now take care of yourself and keep healing. :-)

Posted: Sun Dec 05, 2010 3:58 pm
by SandyK
This has made my day! I am praying for you.

Posted: Sun Dec 05, 2010 5:06 pm
by CCSVIhusband
So happy reading and re-reading stories like this.

Congratulations and (right on about things being gone you didn't even know could go away) ... happens to a lot of liberatees

AMEN!

Posted: Sun Dec 05, 2010 5:47 pm
by leetz
SO happy for you... Dr. Jesus hard at work!!! YES!!!!!

Posted: Mon Dec 06, 2010 11:15 am
by BooBear
Hearty congrats!!! Welcome to the club!!!

Posted: Mon Dec 06, 2010 11:36 am
by magoo
What an amazing outcome!!! Enjoy every second!

Posted: Mon Dec 06, 2010 11:59 am
by pairOdime
Excellent news....wonderful results!!