Ms, but no CCSVI
Posted: Sat Dec 18, 2010 11:27 pm
Earlier this year, I was contacted by Community Care about CCSVI. They said that they would call me in the second or third quarter of 2011 and that 1-2 months later, I would get the liberation process. About a month after that I was contacted by the Vascular Foundation. They wanted to set up an appointment.
Both of these organizations were in Albany, New York. I finally screwed up the courage to call the Peripheral Vascular Institute in Philadelphia, Pa. I got thier name from the Hubbard Foundation. They emailed me the next day with a form. I emailed the completed form back to them the same day. I tried to be patient because the whole theory seemed cloaked in mystery and unavailability (or at least difficulty to attain.)
After a month, I called and asked what was going on. That was on a Friday and Becky asked if I could come in on Monday. I said, "HELLS YES!" On Monday, I met Dr. Worthington-Kirsch. He performed an ultra sound and said that he didn't see much out of the ordinary, just some turbulance on the right side, but we scheduled a venogram for the next morning. I couldn't believe the speed and ease that everything was taking.
When he did the venogram, the LJV and the azygous were OK, but there was a stuck valve flap on the right side that he venoplasted open. Since then, I've had a tremendous amount of energy and diminished fatigue but I still walk like crap and am bothered by the same myoclonal spasms in my legs every night. I wake up feeling more rested and don't experience the blah feeling or ringing in my ears. And, it was waaay cheaper than Albany.
Frank
Even though I didn't have CCSVI, I'm feeling better. I don't know if it's due to the procedure or if it's all placebo. Either way, I'm enjoying the holiday season. Plus, it was cheaper and closer to home.
Both of these organizations were in Albany, New York. I finally screwed up the courage to call the Peripheral Vascular Institute in Philadelphia, Pa. I got thier name from the Hubbard Foundation. They emailed me the next day with a form. I emailed the completed form back to them the same day. I tried to be patient because the whole theory seemed cloaked in mystery and unavailability (or at least difficulty to attain.)
After a month, I called and asked what was going on. That was on a Friday and Becky asked if I could come in on Monday. I said, "HELLS YES!" On Monday, I met Dr. Worthington-Kirsch. He performed an ultra sound and said that he didn't see much out of the ordinary, just some turbulance on the right side, but we scheduled a venogram for the next morning. I couldn't believe the speed and ease that everything was taking.
When he did the venogram, the LJV and the azygous were OK, but there was a stuck valve flap on the right side that he venoplasted open. Since then, I've had a tremendous amount of energy and diminished fatigue but I still walk like crap and am bothered by the same myoclonal spasms in my legs every night. I wake up feeling more rested and don't experience the blah feeling or ringing in my ears. And, it was waaay cheaper than Albany.
Frank
Even though I didn't have CCSVI, I'm feeling better. I don't know if it's due to the procedure or if it's all placebo. Either way, I'm enjoying the holiday season. Plus, it was cheaper and closer to home.