Posted: Wed Dec 22, 2010 11:52 am
erin, blossom, were you able to get the interview to play?
nopeCece wrote:erin, blossom, were you able to get the interview to play?
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Dr. Sclafani interview
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Posted: Wed Dec 22, 2010 12:16 pm
Posted: Wed Dec 22, 2010 12:25 pm
did you try mag00's instructions for disabling the HD part?
http://www.thisisms.com/ftopicp-147610.html#147610
I did a quick search but it's not turning up on any other outlets, just the vimeo one.
http://www.thisisms.com/ftopicp-147610.html#147610
I did a quick search but it's not turning up on any other outlets, just the vimeo one.
Posted: Wed Dec 22, 2010 12:35 pm
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Posted: Wed Dec 22, 2010 12:41 pm
I couldn't get it to play either.Lyon wrote:I wasn't able to get it to play on this old computer so I tried my son's superfast gaming/video computer which did better but still stopped from time to time, but at least was able to watch it.Cece wrote:did you try mag00's instructions for disabling the HD part?
http://www.thisisms.com/ftopicp-147610.html#147610
I did a quick search but it's not turning up on any other outlets, just the vimeo one.
Posted: Wed Dec 22, 2010 12:49 pm
i'll keep trying or get my brother to help me. windows 7 seems to be a problem often 
Re: Dr. Sclafani interview
Posted: Wed Dec 22, 2010 1:01 pm
Well if Zivadinov is correct, upwards of 1 in 4 people have a demonstrable problem problem with their veins. Should they all be treated?NHE wrote:
I'm certain that there will be a plethora of papers published on CCSVI. However, if someone has a demonstrable problem with their veins, then why should they not be allowed to get them treated?
NHE
I have no stakes in MS being of autoimmune origin. My mother has never taken any DMD's and I have absolutely no personal experience with any of that. I don't like big pharmaceutical firms, or big business generally for that matter. I post here because CCSVI and the hype surrounding it has affected my life in a huge way in the past year.NHE wrote: In addition, where is the "proof" that MS is an autoimmune disease? Nearly all of the journal articles that I've read over the years state that MS is believed to be of autoimmune origin. Moreover, the following statement was just published in a review paper in the journal Neurology...
Re: Dr. Sclafani interview
Posted: Wed Dec 22, 2010 1:14 pm
Sure concerned. Maybe we should just start calling you pharmacerned???concerned wrote:Well if Zivadinov is correct, upwards of 1 in 4 people have a demonstrable problem problem with their veins. Should they all be treated?NHE wrote:
I'm certain that there will be a plethora of papers published on CCSVI. However, if someone has a demonstrable problem with their veins, then why should they not be allowed to get them treated?
NHE
I have no stakes in MS being of autoimmune origin. My mother has never taken any DMD's and I have absolutely no personal experience with any of that. I don't like big pharmaceutical firms, or big business generally for that matter.NHE wrote: In addition, where is the "proof" that MS is an autoimmune disease? Nearly all of the journal articles that I've read over the years state that MS is believed to be of autoimmune origin. Moreover, the following statement was just published in a review paper in the journal Neurology...
You know I am messing with you! So any suggestions how I can get this thing to play on my computer??? Also my two cents on the question about should people be allowed to get their veins treated if there are demonstratable problems is that first we need to prove that having a "different"venuous system is really a problem. I mean we want to make sure connections are not being made where there are none. Ok off to a Christmas party!!Posted: Wed Dec 22, 2010 1:17 pm
If you could play the interview, scorpion, Dr. Sclafani does say he sees these vein malformations, "mostly in multiple sclerosis patients," that he doesn't see otherwise....
Posted: Wed Dec 22, 2010 1:33 pm
Great. Now how about 20 of us go to him for testing(10 of us with MS the other 10 without) and have him tell us which of us have MS and which do not. If he can do that he will have my attention. After that he still needs to prove that the malformations in some way contribute to the worsening of MS but he will at least have the first step out of the way.Cece wrote:If you could play the interview, scorpion, Dr. Sclafani does say he sees these vein malformations, "mostly in multiple sclerosis patients," that he doesn't see otherwise....
Posted: Wed Dec 22, 2010 1:52 pm
He is not a neurologist, I don't think he will be telling anyone they have MS? He has however been telling people if they have CCSVI or not. The doppler testing is done at King's County Hospital. Perhaps they would need a (grumble) IRB passed before allowing the testing you suggest! Anyway it doesn't seem to be his focus. Perhaps another investigator will try this.
Posted: Wed Dec 22, 2010 9:38 pm
venooplasty is efficacious and safe. However that is a general term. with respect to ccsvi, there needs to be much work to determine who benefits, how to treat, how to do surveillance, how to handle technical challenges, what if any anticioagulation is necessary, what is the role of stents, i could go on and onLyon wrote:I wasn't able to get it to play on this old computer so I tried my son's superfast gaming/video computer which did better but still stopped from time to time, but at least was able to watch it.Cece wrote:did you try mag00's instructions for disabling the HD part?
http://www.thisisms.com/ftopicp-147610.html#147610
I did a quick search but it's not turning up on any other outlets, just the vimeo one.
I appreciate that, like other pro CCSVI'ers, Dr Sclafani admits that we need to use caution and that nothing has been conclusively proven regarding the theory of CCSVI but he ruins it by saying pretty much that venoplasty has shown to be efficacious with acceptable risk so the operation should continue to be performed in the meantime.
One is left wondering...."if venoplasty has shown to be efficacious with acceptable risk, why run clinical trials and if clinical trials haven't been done, how can a responsible person say venoplasy is efficacious with acceptable risk and should be done"??
So until these practical matters are addressed, i am saying that a randomized trial is premature.
Posted: Thu Dec 23, 2010 10:42 am
are you ready for your angiogram. And how will we pay for this. i am willing to forgo my fee are you willing to put up some of your money?scorpion wrote:Great. Now how about 20 of us go to him for testing(10 of us with MS the other 10 without) and have him tell us which of us have MS and which do not. If he can do that he will have my attention. After that he still needs to prove that the malformations in some way contribute to the worsening of MS but he will at least have the first step out of the way.Cece wrote:If you could play the interview, scorpion, Dr. Sclafani does say he sees these vein malformations, "mostly in multiple sclerosis patients," that he doesn't see otherwise....
Posted: Thu Dec 23, 2010 4:59 pm
I will make popcorn now.
Posted: Thu Dec 23, 2010 5:23 pm
bring it on