Is it poss. to get a count of how many have been tested?
Posted: Sun Jan 02, 2011 4:39 pm
Hi:
I first asked my neuro about CCSVI in Dec. 2009, about a week after the news broke in Canada. She called it "roto-rooter". I asked again at my 6 month f/u. She was still not very enthused or interested about it.
Now it's a year later, I see her in 10 days and I want hard, fast evidence to show her. Is there anywhere to get an accurate/semi-accurate count of how many people have had the testing and treatment? I know a few numbers here and there, i.e. Hubbard (125), Albany (180), Zamboni, etc. But there are places such as Mexico, Kuwait, Poland, Bulgaria, Egypt and numerous physicians in the US who have done a hundful. Is there anywhere keeping track of all the procedures?
It's frustrating to me because I am on Tysabri (Diesaybri) and the risk from angioplasty seems much lower than the risk of PML from taking Tysabri!
Thanks in advance!
I first asked my neuro about CCSVI in Dec. 2009, about a week after the news broke in Canada. She called it "roto-rooter". I asked again at my 6 month f/u. She was still not very enthused or interested about it.
Now it's a year later, I see her in 10 days and I want hard, fast evidence to show her. Is there anywhere to get an accurate/semi-accurate count of how many people have had the testing and treatment? I know a few numbers here and there, i.e. Hubbard (125), Albany (180), Zamboni, etc. But there are places such as Mexico, Kuwait, Poland, Bulgaria, Egypt and numerous physicians in the US who have done a hundful. Is there anywhere keeping track of all the procedures?
It's frustrating to me because I am on Tysabri (Diesaybri) and the risk from angioplasty seems much lower than the risk of PML from taking Tysabri!
Thanks in advance!