CCSVI treatment in Tukwila, WA
Posted: Wed Jan 05, 2011 12:39 am
Hi. I was treated on January 3rd. My husband wrote up a short note he posted to friends and family on Facebook and I'm sharing it with you.
I will post updates again shortly.
I don't know the percentages of stenosis yet. I do know at least a 16 mm balloon was used. I'll have more info when I get the report.
Written by my husband:
We arrived early but the doctor was running a little late with the patient ahead of us so Sandy wasn't officially wheeled into the procedure room until 11am. The pre-briefing and prep care from the doctor and ...staff were excellent; very informative and good bedside manner.
I was not allowed in the procedure room so at 11am I went back to the waiting room and sat with Pattijean and Sam (Sandy's mom and older brother who both rearranged their schedules to be there). The procedure was predicted to take about 2 hrs; it ended up being only a little longer than that because all five veins in question needed some kind of attention. She was awake for the whole procedure (with some minimal painkillers).
After they brought her out she had another 2.5 hours of recovery. She was in very good shape; a little weak but overall she felt good. The doctor gave us the after-action report and said that the whole thing went very, very well and Sandy was a real trooper (probably because he didn't see her crying while we prayed beforehand).
So... the results:
Nothing immediately dramatic. Bear in mind that Sandy has had MS for the last 17 years and that's a lot of damage to undo; it isn't going to happen overnight. HOWEVER two things to make note of...
1. Sandy was able to *stand* at the front counter while we paid the bill. After a physically and emotionally exhausting day with only 5 hours of sleep the night before, this would normally be impossible. She *should* have been a wasted, limp ragdoll.
2. During the trip back to Kingston (1.5 hours) she did not sleep in the car. And on our way home we stopped at the grocery store. She was able to come inside with me and take care of getting a prescription filled at the pharmacy while I rounded up some chow. She was also able to stand *unassisted* in the checkout lane. A week ago she would never have made it out of the car. Again, this happened at the end of what should have been a draining and devastating day.
Bottom line: Improvements will come SLOWLY, but they are now possible and appear likely.
I will post updates again shortly.
I don't know the percentages of stenosis yet. I do know at least a 16 mm balloon was used. I'll have more info when I get the report.
Written by my husband:
We arrived early but the doctor was running a little late with the patient ahead of us so Sandy wasn't officially wheeled into the procedure room until 11am. The pre-briefing and prep care from the doctor and ...staff were excellent; very informative and good bedside manner.
I was not allowed in the procedure room so at 11am I went back to the waiting room and sat with Pattijean and Sam (Sandy's mom and older brother who both rearranged their schedules to be there). The procedure was predicted to take about 2 hrs; it ended up being only a little longer than that because all five veins in question needed some kind of attention. She was awake for the whole procedure (with some minimal painkillers).
After they brought her out she had another 2.5 hours of recovery. She was in very good shape; a little weak but overall she felt good. The doctor gave us the after-action report and said that the whole thing went very, very well and Sandy was a real trooper (probably because he didn't see her crying while we prayed beforehand).
So... the results:
Nothing immediately dramatic. Bear in mind that Sandy has had MS for the last 17 years and that's a lot of damage to undo; it isn't going to happen overnight. HOWEVER two things to make note of...
1. Sandy was able to *stand* at the front counter while we paid the bill. After a physically and emotionally exhausting day with only 5 hours of sleep the night before, this would normally be impossible. She *should* have been a wasted, limp ragdoll.
2. During the trip back to Kingston (1.5 hours) she did not sleep in the car. And on our way home we stopped at the grocery store. She was able to come inside with me and take care of getting a prescription filled at the pharmacy while I rounded up some chow. She was also able to stand *unassisted* in the checkout lane. A week ago she would never have made it out of the car. Again, this happened at the end of what should have been a draining and devastating day.
Bottom line: Improvements will come SLOWLY, but they are now possible and appear likely.