Posted: Wed Jan 12, 2011 8:30 am
what an A-hole
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Cece, I'm sorry you had a bad experience, and that your doctor felt the need to rant a little (for what it's worth, my Neurologist has been very supportive and interested, and I assume he isn't completely unique in that respect).Cece wrote:Some high points from his ranting:
* possible symptomatic relief but nothing to do with the cause of MS
MrSuccess wrote:not suggesting a '' Palace Revolt " ....... just think it's always good to remind certain medical professionals that they work for YOU... and you expect them to treat you with respect and dignity .
And that's a 2 way street.
From your many posts Cece .... we can see that you are a very kind and polite person.
It's shameful when this great attribute - kindness & politeness - get's taken advantage of ....... by frightened bully's.
Yes ..... your Neuro is frightened ....... if and when CCSVI - MS is established ...... his/her accountant will be a little less busy.
Mr. Success
that is news to me.Hopeful10 wrote:Does anyone know if Cece's neuro is right about Zivadinov no longer supporting CCSVI? And if that in fact is the case, has Zivadinov explained why not?Cece wrote:Some high points from his ranting....
* Zivadinov is no longer behind this
No, but I took it as a misinterpretation of what Zivadinov was presenting at ECTRIMS.mjc701 wrote:that is news to me.Hopeful10 wrote:Does anyone know if Cece's neuro is right about Zivadinov no longer supporting CCSVI? And if that in fact is the case, has Zivadinov explained why not?Cece wrote:Some high points from his ranting....
* Zivadinov is no longer behind this
Cece - did he elaborate?
I think what my neurologist was saying was a misinterpretation of this. You can look at the findings that there is worse CCSVI in patients with more advanced MS and get into debating whether MS causes CCSVI or CCSVI causes MS. It's not much of a debate, because congenital malformations happen first, but for anyone not accepting these are congenital, it could raise doubts.Much of the evidence presented at ECTRIMS was mixed, on the whole seemingly confirming a correlation between Multiple Sclerosis and the vascular abnormalities known as CCSVI, but also casting some doubt as to whether or not CCSVI is a cause, rather than an effect, of Multiple Sclerosis. Dr. Robert Zivadinov, who leads the team of researchers vigorously investigating CCSVI at the University of Buffalo, presented several very interesting papers. One paper demonstrated that the severity of CCSVI increases with the severity of Multiple Sclerosis symptoms experienced by patients, and with a more advanced disease course. These findings were backed up by papers presented by researchers from Beirut and Italy. If CCSVI were the cause of MS, the researchers would expect that a constant level of vascular abnormalities would be seen across the entire spectrum of disability levels and duration of disease among patients studied, which is not what their studies demonstrated. Other research presented at the conference contradicted these findings, such as a paper presented by Dr. Marian Simka, an Interventional Radiologist in Poland who has been done hundreds of Liberation Procedures, which found that CCSVI plays a role in the cause and progression of MS, and that the vascular abnormalities were most likely congenital.
Another study presented by Dr. Zivadinov found that subjects who presented with CCSVI had significantly more lesions and brain atrophy as measured by MRI than those MS patients without vascular abnormalities. Yet another investigation presented by Dr. Zivadinov looked at the correlation between a gene implicated with MS, and CCSVI, and found that the data supported an association between MS disease progression and CCSVI separate from the suspect gene. The implications of these findings are that CCSVI could be a risk factor in developing the disease, or a result of the progression of MS.
http://www.wheelchairkamikaze.com/2010/ ... -info.htmlOne of the big problems involved in the study of CCSVI in that none of the noninvasive imaging techniques used to try to detect venous abnormalities in patients before having them undergo an invasive catheter venogram are all that reliable. MRV imaging in particular has proven to be almost worthless, as yet another study conducted by Dr. Zivadinov and presented at ECTRIMS demonstrated. Doppler Sonography, while more accurate, is only useful in detecting CCSVI when used according to very specific protocols, and conducted by a highly skilled operator. Even when such conditions are met, Sonography is somewhat subjective, as the Zamboni trained sonographer who did my Doppler scan has said. Sonograms can be interpreted differently by different physicians, and time after time both MRV and sonogram imaging done on patients have proven to be unreliable once a catheter venogram is performed. The blockages suggested by the noninvasive techniques simply don't correspond to what is actually found in patients when the catheter is inserted into their veins.