I had my ccsvi procedure on Saturday!
Posted: Fri Jan 21, 2011 10:49 am
I had my treatment in Scotland and the whole experience was extremely positive! Every single member of the team at the clinic were really really great! The surgeon was so genuine, calming and kind!
I had my azygous and left and right jugulars ballooned successfully. I have been told to rest for a week and I am already seeing improvements, I am 27 and my walking has been badly effected by ms! My legs which were really stiff are not now! They are like jelly because they have got no muscles! Heehee! It feels so good that things are changing! I dont use a wheelchair but I do use a mobility scooter for clothes shopping and walks! So I need to get leg muscle building and me and my husband have ordered a recumbent exercise bike! Also I have for ages been really really chilly with freezing feet! Well already that's changed! I haven't had the fire on once and the house is a normal temperature! Gary my husband is amazed because I normally have him suffering with the heat in here! No more freezing feet in bed either! I also for years have had a red/blue right foot (the side that really struggles and I have right drop foot) now it's normal colour! Apart from two toes which are nearly there bless them!
I haven't tested properly my balance yet because I am chilling! Lol! My right foot drop is quite bad - I use an electric foot drop stimulator - I am sooo hoping that given time this will improve - what do u reckon? Any experience with that?
A little while ago I gave up beta interferon in place of ldn and I probably wont be seeing my neurologist again! I have found a great doctor at the essential health clinic and I will be going to see him Instead. I also have a great physio and I will be seeing her soon.
All in all it has only been 5 days and I am feeling great about the future and excited about rebuilding my physical self! Oh yeh I've got pinky cheeks too!
Carrie x
I had my azygous and left and right jugulars ballooned successfully. I have been told to rest for a week and I am already seeing improvements, I am 27 and my walking has been badly effected by ms! My legs which were really stiff are not now! They are like jelly because they have got no muscles! Heehee! It feels so good that things are changing! I dont use a wheelchair but I do use a mobility scooter for clothes shopping and walks! So I need to get leg muscle building and me and my husband have ordered a recumbent exercise bike! Also I have for ages been really really chilly with freezing feet! Well already that's changed! I haven't had the fire on once and the house is a normal temperature! Gary my husband is amazed because I normally have him suffering with the heat in here! No more freezing feet in bed either! I also for years have had a red/blue right foot (the side that really struggles and I have right drop foot) now it's normal colour! Apart from two toes which are nearly there bless them!
I haven't tested properly my balance yet because I am chilling! Lol! My right foot drop is quite bad - I use an electric foot drop stimulator - I am sooo hoping that given time this will improve - what do u reckon? Any experience with that?
A little while ago I gave up beta interferon in place of ldn and I probably wont be seeing my neurologist again! I have found a great doctor at the essential health clinic and I will be going to see him Instead. I also have a great physio and I will be seeing her soon.
All in all it has only been 5 days and I am feeling great about the future and excited about rebuilding my physical self! Oh yeh I've got pinky cheeks too!
Carrie x