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Controversial surgical procedure gives woman her life back

Posted: Fri Jan 21, 2011 1:06 pm
by Cece
http://www.theprovince.com/health/Story ... story.html
Right after MacNeil, 39, had surgery in Tychy, Poland, she said she had an energy spike greater than anything she'd felt for 20 years.

That lasted about six weeks and then she started to deteriorate and, by the beginning of October, felt very fatigued once more.

"Then my energy started to build again and now I'm at a level where, although I'm not 100 per cent, I'm very pleased with it," she added
"I pretty well lived on my couch for two years," she said. "I could never pick my daughter up from school and now I can everyday. So that's really special for me."

Posted: Fri Jan 21, 2011 1:15 pm
by EJC
Yup, that'll be that placebo again........<rolleyes>

Posted: Fri Jan 21, 2011 1:41 pm
by SaintLouis
Great articles you're finding Cece, thanks for sharing.

Posted: Fri Jan 21, 2011 1:52 pm
by nellie
Thanks Cece for sharing those articles. Gives us all hope!

Posted: Fri Jan 21, 2011 2:55 pm
by Cece
There are always these sorts of articles coming out of Canada. The trick seems to be to search for liberation procedure instead of CCSVI. :)

Posted: Fri Jan 21, 2011 3:36 pm
by garyak
This would seem to provide some hope for at least some patients who experience initial improvement but then slide backwards weeks latter

Posted: Sat Jan 22, 2011 2:18 am
by EJC
Emma experienced the "one week slide" - in her case it lasted about three days. We have no idea what it was, it could have been a mini relapse, it could be the body reacting to it's new blood flow - we just don't know.

After three days it just disappeared and all the post op improvements returned along with a few more bonus improvements.

We're now a month on and she continues tiny daily incremental improvements. It's only when you take a week by week or month by month snapshot that you realise the extent of the improvements.