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scorpion wrote: Of course I may have misinterpreted this comment but I found it interesting where Dr. Embry encouraged people to donate their money to charities: "If one wants to help persons with MS, then I suggest that contributions be made to charities that spend the majority of their funds on research and which want to see a CCSVI clinical trial happen as soon as possible." He wouldn't be talking about HIS agency would he?

Bingo.

By the way, why isn't Embry unearthing scandalous financial information about the American Heart Association? Their mission: "Our mission is to build healthier lives, free of cardiovascular diseases and stroke. That single purpose drives all we do." They haven't pledged even a penny to CCSVI research, as far as I can tell.

my dear fellow TIMS member ..... I wish to apologize to you for labeling your opinion as '' absurd '' .

Mr. Success has clearly broken The Golden Rule and did not treat you as I wish others would treat me. I regret labeling your opinion as absurd.

Had you labelled my opinion ''absurd '' ...... I more-than-likely would have responded in a most Ungentlemanly manner.

I do .... however .........disagree with your point of view.

Mr. Success is a veteran of the school yard ..... and has been informed more than once ....... that Mr. Success' mother ..... '' dives for Roto-Rooter'' . I cannot confirm nor deny these allegations as ..... what Mrs.Success Senior does in her spare time is ...her business ......

This post subject is important . All opinions are welcomed .

Let's just elevate the conversation ......... to a more civil level






Mr. Success

13%? why the pie chart states 25%...

concerned wrote:According to the new party line, CCSVI docs aren't even looking at MS so why would the MS society fund research into it?

CCSVI is highly associated with MS as shown in many studies. It is rooted in research, published in peer-reviewed journals. It appears that it may be a promoter of MS, as Dr. Dake stated it, and it is one of the only promoters of MS that is treatable. Yes, I believe the MS Societies are derelict in not funding CCSVI research.

Cece wrote:

concerned wrote:According to the new party line, CCSVI docs aren't even looking at MS so why would the MS society fund research into it?

CCSVI is highly associated with MS as shown in many studies. It is rooted in research, published in peer-reviewed journals. It appears that it may be a promoter of MS, as Dr. Dake stated it, and it is one of the only promoters of MS that is treatable. Yes, I believe the MS Societies are derelict in not funding CCSVI research.

All kinds of things have been published in peer-reviewed journals and never replicated by other labs. Replication > Peer-Review Process.

concerned wrote:

Cece wrote:

concerned wrote:According to the new party line, CCSVI docs aren't even looking at MS so why would the MS society fund research into it?

CCSVI is highly associated with MS as shown in many studies. It is rooted in research, published in peer-reviewed journals. It appears that it may be a promoter of MS, as Dr. Dake stated it, and it is one of the only promoters of MS that is treatable. Yes, I believe the MS Societies are derelict in not funding CCSVI research.

All kinds of things have been published in peer-reviewed journals and never replicated by other labs. Replication > Peer-Review Process.

That's why I mentioned "in many studies." That's just for the association side, it was shown in 10 out of 14 ECTRIMS studies, that's a fair bit of replication. The endovascular treatment trial by Zamboni still stands alone and needs replication, absolutely. There are years of research to come on all of this. I find what the doctors tell of us of their clinical findings to be of especial interest, they are ahead of the research.

Other doctors and their studies say the opposite so I don't know what to think. I will wait for further research before saying it probably works or it probably doesn't.

"other docs"- neuros?

garyak wrote:"other docs"- neuros?

"neuro trope" - paranoia?

"It's a stretch to think opening up veins is going to deal with or reverse an injury that is due to demyelinating plaque, whereas the symptoms that are more general, such as fatigue and brain fog that are much more related to an obstruction in venous outflow from the brain -- those could potentially be reversed." --Dr. Michael Dake

I guess if your main symptoms are fatigue and/or brain fog I understand the urgency of having your neck cut open. But overall it is very hard to reconcile that quote with the passion (often times vitrol) of the CCSVI movement.

Isn't this thread ......debate about the role the MS Society ?

What has Dr. Dake got to do with that ?


Suggestion : lighten the first portion of you Dake quote ..... and highlight and darken the last portion of Dake's quote .

Nice to see you visit the CCSVI topic , Rainer .

You usually are shilling for drug use ......... hmmmmm ........ how is your **** stock portfolio doing ?




Mr. Success

rainer wrote:I guess if your main symptoms are fatigue and/or brain fog I understand the urgency of having your neck cut open. But overall it is very hard to reconcile that quote with the passion (often times vitrol) of the CCSVI movement.

Venoplasty of the jugular veins does NOT involve cutting the neck open.


NHE

scorpion wrote: Oh for gods sake give it a rest Dr. Embry.

Intelligent discourse, but a bit dubious.

The actual post was about how the MS Society (Canadian, I presume) has a tiny budget for all its research, which is in jeopardy when anything else is threatened, being such a small fraction of their spending. This includes the money from bikeathons and walkathons, because 45% of their operating costs are fundraising, yet not declared with their other operating costs, making office stationary and all other spending look famously efficient.

This woeful budget is key to many CCSVI researchers, as it is also to many autoimmune-types. They must be hoping the bulk of research in this area will get supported by drug traffickers (excuse me, vendors).

Yet they command the attention of, and demand financial support from the Canadian Federal Government who think they have a fundamental light source shining on their knowledge of all things 'MS'. (All entendres euphoniously rendered, for the sake of the management.)

How this got to be about vascular surgery and other light topics I don't even want to know.

BTW people around here seen to know quite a lot of Latin. Is that a prerequisite I forgot to take? As my Latin teacher used to say, "semper ubi sub ubi".

1eye wrote:BTW people around here seen to know quite a lot of Latin. Is that a prerequisite I forgot to take?

I took two years of it in college. When I should have been taking biology and venology!

rainer wrote:"It's a stretch to think opening up veins is going to deal with or reverse an injury that is due to demyelinating plaque, whereas the symptoms that are more general, such as fatigue and brain fog that are much more related to an obstruction in venous outflow from the brain -- those could potentially be reversed." --Dr. Michael Dake

I guess if your main symptoms are fatigue and/or brain fog I understand the urgency of having your neck cut open. But overall it is very hard to reconcile that quote with the passion (often times vitrol) of the CCSVI movement.

Agree 100% Rainer. Even though the lead researchers have "watered down" the initial expectations people can not let go of their inital mantras.