This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks, Nunzio, that helps. It is a simpler procedure the way you explain it. I keep thinking of these grafts as a treatment for hypoplasia, which is often higher up.

dania, i hope you soon find someone to get this terrible thing that has happened to you fixed. and i dont take it at all that you are trying to scare anyone. making people aware of what can happen and did happen to you is just as important as the success stories.

early on we heard mostly it worked or it didn't for a person. and as time marches on whether it worked or didn't work there is some very serious things not so good happening. people need to be very aware of this.

i am still pro ccsvi and ccsvi research. for some it works. sadly, at this point not for all.

dania, Thanks for your questions. I think in this forum we hope to find some answers. I have a LJV that is blocked and my speech has started slurring as a result, I may not have other choices how to fix this. I find out if the RJV is still open in a few weeks, but with my sudden decline I can't be very positive. I hope that you find some solutions! I would help if I could.

msjen wrote:dania, Thanks for your questions. I think in this forum we hope to find some answers. I have a LJV that is blocked and my speech has started slurring as a result, I may not have other choices how to fix this. I find out if the RJV is still open in a few weeks, but with my sudden decline I can't be very positive. I hope that you find some solutions! I would help if I could.

Thanks. It would be very interesting to know how many people had the procedure and now 1 or more veins are 100% blocked and their doctor was unable to perform angioplasty with the second procedure. And how many found that angioplasty was not possible with the first procedure.

This surgery is done in Canada and has nothing to do with MS.
I would be very surprised Dania, if you would be turned away outside Quebec.
I am very sorry you had to go through this.
10 people, known, have had this done here in Canada, 2of whom were doctors.
Why did he leave California to do this?
I wish you the very best, and you are a very brave soul.
PA

pollyanna wrote:This surgery is done in Canada and has nothing to do with MS.
I would be very surprised Dania, if you would be turned away outside Quebec.
I am very sorry you had to go through this.
10 people, known, have had this done here in Canada, 2of whom were doctors.
Why did he leave California to do this?
I wish you the very best, and you are a very brave soul.
PA

No doctor would touch me in Quebec. I was told by one vascular doctor that he does not believe in CCSVI. Plus as it is not on the list of acceptable operations the government would not allow it to be done. So I had it done outside Canada Feb 29 and I am slowly improving every day.

I was also told by an ear,nose and throat specialist that they would never touch me. My lijv is completely occluded and my rijv is 85% occluded. There are a couple of problems in Canada and one is that neuro's control the MS world. The other is that alot of the dr's don't actually believe that the jugulars do anything and if they do believe, we have MS so any issue is MS and then they don't/can't/won't do anything and this is acceptable.

there is a lady on my group that had this done just like you blocked and scarring she found a doctor and she is doing great Jan Wexler
Dr Arata was the one that told me I needed a vein bypass after he found my veins were blocked with scarring. He researched over the weekend and that is what he found. He tried to find a doctor who would do this surgery gave me a name of a neurosurgeon and sent my info to him and I never heard back from this doctor after many attempts of trying to contact him. If you have a diagnosis of MS they do not want to touch you and the doctor may be willing to do it but their legal department will not allow it.this is a letter she wrote she is on face book you can tell her april waller sent you to her maybe she can help you and a pray to god for you too love april

That's me Jan Wexler.

The diagram that is being presented here referred to last by Cece of a sigmoid and transverse sinus-to- internal jugular vein saphenous interposition graft is NOT the bypass Dr. Hernandez is doing on his patients. This diagram indicates that the brain would need to be opened and Dr. Hernandez does not offer this type of surgery.

Due to the jugulars having a blood flow issue it's remained in the hands of an "experienced" Cardiovascular Surgeon to fix. Dr. Hernandez is helping patients by re-constructing the venous drainage system of the internal jugulars in doing so he is by-passing the occlusion either due to a stent or scarred jugulars that are now 100% occluded. Patients are presenting as a variation of "SVC Syndrome".

Thank you,

Thanks, excel, yes, this image is from a paper where they drilled into the skull to attach the jugular directly to the venous sinuses! The grafting we've been discussing more recently, done separately by Dr. Stone and Dr. Hernandez, was a portion of the jugular cut out and a new portion attached in. And then there is the jugular patch angioplasty, which is an interesting option where a patch is sewn in, widening the jugular.

Surgery of this nature is more invasive than angioplasty, where the catheters and balloons go through the veins and the only cut is the little entry cut down by the groin.