Posted: Tue Mar 22, 2011 1:33 pm
Glad to hear it Cece ... I'm sure it brings peace of mind.
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i am going to predict that the one month scan offers no benefit but added costs in the asymptomatic patient after valvuloplasty or venoplasty.Cece wrote:I had an early scan done today, it showed no thrombus in either jugular. Definitely peace of mind there. It was not a full CCSVI exam.
Very much agree.bruce123 wrote:This information can be a HUGE benefit to Canadians and others who have to travel great distances to find trained ultrasound technicians.
Glass half empty there?I would think that this information should be explained to every patient since we now expect almost every patient to lose their gains at some point after their procedure.
Bruce
Congratulations, Cece. I was thinking about you yesterday. It was worth having the test early for the peace of mind.Cece wrote:I had an early scan done today, it showed no thrombus in either jugular. Definitely peace of mind there. It was not a full CCSVI exam.
Cece, you are a master at seeing the glass as half full and I thank you for that. We all benefit from your positive attitude here on TIMS.Cece wrote: Glass half empty there?
I don't think it's as dire as that. If we go with Dr. Zamboni's original findings, 50% of patients retain their opened veins.
THANK YOU BRUCE.bruce123 wrote:Cece, you are a master at seeing the glass as half full and I thank you for that. We all benefit from your positive attitude here on TIMS.Cece wrote: Glass half empty there?
I don't think it's as dire as that. If we go with Dr. Zamboni's original findings, 50% of patients retain their opened veins.
Dr. Zamboni's original findings were indeed 50% but I just can't believe that any more. I have no actual data but from here on TIMS it seems that there are a few people who's improvements have lasted several months but most (??) seems to have setbacks, with many having second, third and fourth procedures.
With all the publications that have been released lately, are there any that address the outcomes after several months?
Bruce.
I don't think there were any. Dr. Simka's had a large number of patients (around 500) but I think it only looked at immediately post-procedure. To my knowledge, Dr. Zamboni's is the only one to look at long term results post-procedure, at 18 months initially. He has talked about 3-year results at conferences. Actually Dr. Dake also presented on 1-year results of his Dake patients, which showed continuing improvement on fatigue among RR patients at one year. It's hard to say, though, because I know Dr. Dake did follow-up procedures particularly at the 2 month appointments for whoever needed them.bruce123 wrote:With all the publications that have been released lately, are there any that address the outcomes after several months?