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Re: Thanks CaptBoo

Posted: Sat Mar 26, 2011 6:47 am
by scorpion
MarkW wrote:Thanks your info CaptBoo. You have given the correct level of detail to describe trends in your MS over a significant period of time. The treatments for stenoses are changing so the method used historically on you is personal to you, say nothing. Six month symptom trends are not usually taken to be placebo or normal variation in MS by experts. Please ignore the naysayer Scorpion and do not give details. In MS the overall trend is invariably downwards but not for you, great news.

Kind regards,

MarkW
The only naysayers are people like you who come on here pretending to have MS. Anyone with a bit of common sense would understand people with MS want new treatments and would be happy that something as simple as getting their veins open would relieve some symptoms of MS. It is obvious for some of you not being proven wrong is more important then getting to the truth or having a decent discussion about CCSVI and that is a shame. The message seems to be pretty much be if you have MS and believe that fixing CCSVI is the answer you are embraced and given support while the "naysayers"(whatever that means) can pretty much go to hell. I swear some of you act like when someone says something critical about CCSVI that they are attacking your mama or something. It is a theory folks, that is all.No matter what I or anyone else on here think about CCSVI research will move forward and that is a good thing, right? Geeeesssh. Capt. Boo, I am glad you have had relief from your symptoms and I hope they continue as I would wish for ANYONE with MS.

Posted: Sat Mar 26, 2011 6:49 am
by Cece
congrats CaptBoo :)

Posted: Sat Mar 26, 2011 11:23 am
by thornyrose76
It's very encouraging Capt Boo. :)

Posted: Sun Mar 27, 2011 7:53 pm
by Drury
Great news CaptBoo!!

Re: Thanks CaptBoo

Posted: Sun Mar 27, 2011 8:30 pm
by Cece
scorpion wrote: I swear some of you act like when someone says something critical about CCSVI that they are attacking your mama or something.
Hmmm, it depends on what the criticism is and if it is constructive or cutting, but you have a point, scorpion. I am invested in CCSVI, emotionally and physically now that I've had the procedure done. :)
It is a theory folks, that is all.
A theory, a political movement, a salvation, a promising new treatment, a restoration of what has been lost...it is different things to different people, isn't it?
No matter what I or anyone else on here think about CCSVI research will move forward and that is a good thing, right? Geeeesssh. Capt. Boo, I am glad you have had relief from your symptoms and I hope they continue as I would wish for ANYONE with MS.
I agree with this, relief is huge, and MS is awful.

Posted: Mon Mar 28, 2011 8:40 am
by Trish317
Best wishes for continued improvements, Capt.