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states without CCSVI-treating IRs
Posted: Wed Mar 30, 2011 9:02 am
by Cece
Hawaii
South Dakota
North Dakota
Iowa
Wisconsin
Alaska
South Carolina
West Virginia
Ohio
Utah
New Mexico
Tennessee
Texas
Louisiana
Arkansas
Oklahoma
Colorado
Nevada
Kansas
Michigan*
Missouri*
Please post if you know your state does not have a CCSVI-treating IR (or conversely if it is on this list in error.) I'll update this post accordingly. I'd like to get a sense of where the gaps still are, nationwide.
* I can also update if a state has no openly treating CCSVI docs but there is someone to pm who might know of one. In this category, there is now Michigan (formyruca) and Missouri (Ozarkcanoer).
Posted: Wed Mar 30, 2011 10:28 am
by IHateMS
west virginia? ohio?
Posted: Wed Mar 30, 2011 11:20 am
by CaptBoo
New Mexico, Texas, Louisiana, Arkansas, Oklahoma, Colorado, Utah, Nevada, Kansas. I don't know, bit I have heard nothing about these states. Texas used to have a pin on Hubbard's IRB map, but it disappeared.
Posted: Wed Mar 30, 2011 11:21 am
by CaptBoo
Look! I'm a family elder.
Posted: Wed Mar 30, 2011 12:55 pm
by David1949
Michigan.
Posted: Wed Mar 30, 2011 2:44 pm
by civickiller
Sucks being in Hawaii. I was talking to a local IR and he seemed interested. Is there a website or something that says what the IR procedure has to be, something I can print out an show him?
Posted: Wed Mar 30, 2011 5:29 pm
by bestadmom
Civickiller,
Hopefully the IR you found went to SIR this week. If not he should reach out to some of the leading doctors. They all share. There is a professional forum on ccsvi for members of endovascular.org.
Posted: Wed Mar 30, 2011 6:08 pm
by bonzo1986
New Mexico does not have anyone doing this. Although there is a vascular surgeon that was recommened to me when I was looking around for capable of doing an MRV.
Posted: Sat Apr 02, 2011 12:13 pm
by Cece
civickiller, what about Dr. Sclafani's paper in endovascular today from last summer?
http://bmctoday.net/evtoday/pdfs/et0710 ... lafani.pdf
It might be getting outdated, what has changed since then?
We had another TIMS member, selkie, from HI who couldn't find treatment afaik. I would love to see a Hawaiian IR get started. Travelling for treatment is possible but you need someone local for follow-ups or complications and you guys are just so far out there.
Posted: Sat Apr 02, 2011 1:07 pm
by thornyrose76
Missourri?
Posted: Sat Apr 02, 2011 1:07 pm
by thornyrose76
What about Tennessee?
Posted: Sat Apr 02, 2011 1:26 pm
by bestadmom
There is an IR at WashU in St Louis doing treatments. Ozarkcanooer knows his name.
Posted: Tue Apr 12, 2011 7:52 pm
by Cece
I just saw Utah mentioned as having two CCSVI IRs...Black and Hatch in provo, ut...it might be testing only?
Posted: Tue Apr 19, 2011 1:04 pm
by Cece
Texas is officially off the list, they've got CCSVI treatment available at Baylor:
http://www.debakeydepartmentofsurgery.o ... ent_id=272
Posted: Tue Apr 19, 2011 1:18 pm
by CaptBoo
That's Baylor School of Medicine in Houston, not Baylor University in Waco.
That's a huge step in the world of medicine!