Doodles wrote:So, if CCSVI is not a causative factor in MS then MS and CCSVI should not be linked and there is now no reason whatsoever to continue to deny treatment for this vascular problem to people who have also been labelled "MS". The neuros are destroying their own argument. Venoplasty is safe and effective in treating various vascular problems and should now be available to those who have been told they have MS.
I'll once again quote Dr. Dake per the global symptoms, that they resolved the most favorably in his patients vs. obvious degenerative nerve related issues.
Therefore, it stands to reason that there just may be symptoms which are *exclusive* to CCSVI, and respond very well to treatment, cog fog, fatigue, memory etc etc. Since that is a significant portion of all that entailed my particular MS condition, resolving the CCSVI, resolved the global symptoms. Whether or not it did, or did not cause my MS or vice versa, couldn't care less. If it had not been successful in relieving those symptoms, then I wasted a ton of time and money but was left back where I started (and I realize not everyone is "left back where they started").
Nowhere in there is a necessity to prove anything, other than "did fixing my veins, solve the greatest complaints that had a severe impact on my QOL?". I will probably be dead and gone before anything is proven either way.
My CCSVI, to my full satisfaction, was proven to have a significant impact on my global symptoms. Pathology+symptoms+treatment=relief cannot be that difficult an equation for these Dr.'s to fathom. In the end, they are choosing political sides based on predispositions.
Just imagine with me, if the 2004 Mark, just by happenstance, was magically transported not to a neurologists office, but a vascular specialist. He takes a look at what ails me, there's been no other scans, MRI's, spinal taps, neuro function tests, nothing, but via my list of complaints (and leaving out the sudden onset diplopia), he decides to scan my veins, discovers stenosis on both sides, collateral network yadda yadda, and treats me.
I find my fatigue vanishes nearly overnight, along with all the other global symptoms, and continue on my merry way. Let's say that paradigm continued to present day. By rights, I have no inkling of ever having MS, no need for a silly MRI, my life is robust and active, fatigue and all those other things, still gone, and the entire episode just a distant memory.
The only difference between that scenario, and the one now (which of course won't apply equally to everyone), is some other guy in a lab coat saying I have MS. If that had happened, in 2004, I would be of the opinion that MS was no big deal at all, if QOL is any indication.
That's 7 years, got 2 of those nearly knocked down and life couldn't POSSIBLY be any better than it is right now. Yeah, not sure if the myelin is going to grow back, or how much brain damage there really is, or how much better things would be now without that brain damage, but not knowing the hypothetical outcome is not something to lose sleep over, though it makes some interesting conversation I guess.