Laurie has been Liberated-Atlanta Access Care-Dr Sullivan
Posted: Sun May 08, 2011 8:32 am
(please feel free to send this testimonial to your 'letter to the editor')
Seeing is believing, its important that the general public, those NOT directly touched by MS understand that fellow Canadians are suffering, needlessly. Its our hope that this shared testimonial will educate than motivate our fellow Canadians to express their utter disbelief and contempt for a political system that will allow this discrimination to continue.
Please understand, that if you or I present a medical condition that is caused due to a blocked-stenosed jugular vein angioplasty to open that vein would be completed in a timely manner and at no cost , as it should be.
Yet if you have MS, (a study recently completed in Buffalo NY determined 65% of MS patients studied presented occluded jugular veins) Canada Health and OUR Government are on record stating this procedure is not available to Canadians if they have been diagnosed with multiple sclerosis.
The following is an update that we have recently shared with the MS community, friends and loved ones that have made it possible for our joy today. The Canadian MS community have tirelessly over the months petitioned, demonstrated, initiated Internet, letter, and phone call campaigns imploring our elected officials at the Federal & Provincial level to halt this blatant discrimination being imposed on those with the preexisting condition called MS. As our recent Federal election has demonstrated Canadians have the power to make dramatic change. We implore our fellow Canadians to do a simple Google search, five letters, CCSVI. Educate yourself, then educate those around you. Only until all Canadians (not just those suffering) unite will this un Canadian like discrimination and NEEDLESS suffering be stopped.
LIBERATE LAURIE
My wife Laurie PPMS, diagnosed 1990, wheel chair dependent since 1999, unable to transfer on her own since 2008 and a gradual loss of quality of life since. Liberated May 5, 2011 Atlanta Access Care, Dr Kevin Sullivan
Lt & rt jugular veins 60% stenosed 16 & 14 mm balloon used respectively. Azygous stenosed 40% 8mm balloon used. Venography and angioplasty completed. Above stenos treated successfully.
I am very happy to state that there were immediate results.
-blood flow & color down to her toes are pink and warm to the touch
-able to move her toes and rotate her ankles-3 years since that happened
-strength to legs and hands have increased dramatically & able to adjust pressure incrementally as desired, pre was either nothing or all.
-rt eye prior to Liberation impaired-described it like looking through a finger print, now vision has returned to normal, able to read again
-light sensitivity gone, it was sunglasses or drapes drawn pre, as I write this she is having a coffee and gazing at our pond on this beautiful spring day, thoroughly enjoying the moment.
-fatigue gone, sleeping through the night, feels rested
- chronic pain level prior too liberation scaled 8-10 after Liberation 0 obviously impacting fatigue and sleep
-sensitivity to touch has returned waist down
-ringing, sound of crickets in her hears-gone
-has not stopped talking, our Chatty Cathy is back:)
Her nurse Michelle who has made a weekly visit for the last 6 years visited her yesterday (after she arrived home from Atlanta), she literally used the word Miracle to describe our post Liberation Laurie. Talked of (under physicians direction) of weaning Laurie off of the drug cocktail currently on and future rehab if her improvements are permanent.
After all these years of care giving for Laurie the road has been littered with disappointments, one learns to keep ones feet on the ground and to temper ones hopes BUT after Laurie's Liberation the only way I can describe the post Liberation Laurie is beautifully breathtaking.
Side bar: it's one thing to read testimonial on a message board about CCSVI its another to experience a loved one receiving the Liberation Treatment and having Laurie's beautifully breathtaking early results. Were the was despair now is hope with a future again.
Yet it pains us both that this relatively simple and safe intervention is being denied MS suffer's in Canada. After what we have just witnessed it's unconscionable that the Canadian Government's position is to deny any Canadian that has stenosed veins the access to OUR health care system. To remedy such no matter the preexisting condition will reduce the daily suffering of many of our brother, sisters, moms and dads not to mention the potential savings to the heath care system. Our resolve to correct this injustice is now tenfold.
Thank you ALL for your prayers and support, without all of you, the spark that's now back in Laurie's eye, the strength of her voice that allows her to assert herself in a conversation again & lastly that beautiful belly laugh of hers that is ringing out as I type are all back, all conspicuously absent and now beautifully breathtakingly BACK
Laurie & Bill
Seeing is believing, its important that the general public, those NOT directly touched by MS understand that fellow Canadians are suffering, needlessly. Its our hope that this shared testimonial will educate than motivate our fellow Canadians to express their utter disbelief and contempt for a political system that will allow this discrimination to continue.
Please understand, that if you or I present a medical condition that is caused due to a blocked-stenosed jugular vein angioplasty to open that vein would be completed in a timely manner and at no cost , as it should be.
Yet if you have MS, (a study recently completed in Buffalo NY determined 65% of MS patients studied presented occluded jugular veins) Canada Health and OUR Government are on record stating this procedure is not available to Canadians if they have been diagnosed with multiple sclerosis.
The following is an update that we have recently shared with the MS community, friends and loved ones that have made it possible for our joy today. The Canadian MS community have tirelessly over the months petitioned, demonstrated, initiated Internet, letter, and phone call campaigns imploring our elected officials at the Federal & Provincial level to halt this blatant discrimination being imposed on those with the preexisting condition called MS. As our recent Federal election has demonstrated Canadians have the power to make dramatic change. We implore our fellow Canadians to do a simple Google search, five letters, CCSVI. Educate yourself, then educate those around you. Only until all Canadians (not just those suffering) unite will this un Canadian like discrimination and NEEDLESS suffering be stopped.
LIBERATE LAURIE
My wife Laurie PPMS, diagnosed 1990, wheel chair dependent since 1999, unable to transfer on her own since 2008 and a gradual loss of quality of life since. Liberated May 5, 2011 Atlanta Access Care, Dr Kevin Sullivan
Lt & rt jugular veins 60% stenosed 16 & 14 mm balloon used respectively. Azygous stenosed 40% 8mm balloon used. Venography and angioplasty completed. Above stenos treated successfully.
I am very happy to state that there were immediate results.
-blood flow & color down to her toes are pink and warm to the touch
-able to move her toes and rotate her ankles-3 years since that happened
-strength to legs and hands have increased dramatically & able to adjust pressure incrementally as desired, pre was either nothing or all.
-rt eye prior to Liberation impaired-described it like looking through a finger print, now vision has returned to normal, able to read again
-light sensitivity gone, it was sunglasses or drapes drawn pre, as I write this she is having a coffee and gazing at our pond on this beautiful spring day, thoroughly enjoying the moment.
-fatigue gone, sleeping through the night, feels rested
- chronic pain level prior too liberation scaled 8-10 after Liberation 0 obviously impacting fatigue and sleep
-sensitivity to touch has returned waist down
-ringing, sound of crickets in her hears-gone
-has not stopped talking, our Chatty Cathy is back:)
Her nurse Michelle who has made a weekly visit for the last 6 years visited her yesterday (after she arrived home from Atlanta), she literally used the word Miracle to describe our post Liberation Laurie. Talked of (under physicians direction) of weaning Laurie off of the drug cocktail currently on and future rehab if her improvements are permanent.
After all these years of care giving for Laurie the road has been littered with disappointments, one learns to keep ones feet on the ground and to temper ones hopes BUT after Laurie's Liberation the only way I can describe the post Liberation Laurie is beautifully breathtaking.
Side bar: it's one thing to read testimonial on a message board about CCSVI its another to experience a loved one receiving the Liberation Treatment and having Laurie's beautifully breathtaking early results. Were the was despair now is hope with a future again.
Yet it pains us both that this relatively simple and safe intervention is being denied MS suffer's in Canada. After what we have just witnessed it's unconscionable that the Canadian Government's position is to deny any Canadian that has stenosed veins the access to OUR health care system. To remedy such no matter the preexisting condition will reduce the daily suffering of many of our brother, sisters, moms and dads not to mention the potential savings to the heath care system. Our resolve to correct this injustice is now tenfold.
Thank you ALL for your prayers and support, without all of you, the spark that's now back in Laurie's eye, the strength of her voice that allows her to assert herself in a conversation again & lastly that beautiful belly laugh of hers that is ringing out as I type are all back, all conspicuously absent and now beautifully breathtakingly BACK
Laurie & Bill