4th MRV (3rd procedure) tomorrow - any advice please?
Posted: Mon May 16, 2011 9:23 am
Last June i had an MRV and i was told i didnt have any CCSVI - My veins were normal.
I then showed Dr S the images and he kindly assessed them and saw stenosis in my IJVs, Azygos and possibly May Turner.
So in August went abroad and had balloon dilation of both IJVs but not azygos as they didnt see stenosis.
Had slight mobility improvement - mainly spasticity and balance,
but one month later the improvements went away,
so in December went to a different country to get the IJVs re-ballooned and azygos/MT checked.
They ballooned the IJVs And azygos but didnt see MT.
This time there was slight improvement in balance/bladder but not spasticity.
So i was unsure whether the IJVs were correctly ballooned.
I showed Dr S the IJVs images post ballooning and he believed there was still stenosis!
So tomorrow i am having my 3rd procedure (4th MRV) but this time have images to show them exactly where to balloon
I was wondering if anyone has any advice on what i can ask the new IR to check/ make sure is clear?
- I read many CCSVI Post procedure reports from patients who have an EDSS like mine (6.0) and see great improvements in mobility.
i only have spinal/lower body problems, upper body and brain work like a healthy person.
- I would love to be treated by Dr S but dont have the money. But this will be my very last MRV, if this time isnt done correctly then I GIVE UP on CCSVI
thank you
DC10
I then showed Dr S the images and he kindly assessed them and saw stenosis in my IJVs, Azygos and possibly May Turner.
So in August went abroad and had balloon dilation of both IJVs but not azygos as they didnt see stenosis.
Had slight mobility improvement - mainly spasticity and balance,
but one month later the improvements went away,
so in December went to a different country to get the IJVs re-ballooned and azygos/MT checked.
They ballooned the IJVs And azygos but didnt see MT.
This time there was slight improvement in balance/bladder but not spasticity.
So i was unsure whether the IJVs were correctly ballooned.
I showed Dr S the IJVs images post ballooning and he believed there was still stenosis!
So tomorrow i am having my 3rd procedure (4th MRV) but this time have images to show them exactly where to balloon
I was wondering if anyone has any advice on what i can ask the new IR to check/ make sure is clear?
- I read many CCSVI Post procedure reports from patients who have an EDSS like mine (6.0) and see great improvements in mobility.
i only have spinal/lower body problems, upper body and brain work like a healthy person.
- I would love to be treated by Dr S but dont have the money. But this will be my very last MRV, if this time isnt done correctly then I GIVE UP on CCSVI
thank you
DC10