This Is MS Multiple Sclerosis Knowledge & Support Community

Hello, my friends,

For my next clinical trial, I am looking for MS patients who are in their teens to twenties...

Is there anyone out there on this forum who knows of the younger folks?

This study involves NO TRAVEL, and is a retrospective look at growth (prior to 16 months or so of age, obviously before any diagnosis was made).

Pediatricians have been good about taking these growth measurements in the last 20-25 years, but not prior to that. This is why I'm trying to locate the younger MS patients who may be able to find these records.

Can anyone help me? Interestingly, this study ties into CCSVI!

I would be eternally grateful for your help. And as usual, this is a study that I do not get paid to do, and of course, doesn't cost the participant anything, either.

We are on a mission! (Or my favorite battle cry, "This is SPARTA!").

Dr. Diana

Dr. Diana,
Don't know if this will be any help to you but my now 23 year old daughter had postpartum optic neuritis (blurred vision in right eye) about 1and1/2 years ago. Same way my MS started and then 14 years of no symptoms and slow progression until 2009 Sister with pseudo tumor cerebri years ago. Is there a relationship I don't know. I did have CCSVI surgery. It helped with energy but not balance and walking. I hope my daughter can avoid my fate. According to Dr. Flanagan's book they don't know what MS is or what causes it but seem to be all to willing to treat it as an autoimmune disorder. Where's the proof of that?

hi dr. diana, are you in touch with dr. hubbard? their son devin i think is in his 20's.

Hi Coach,

Do you or your daughter have her head circumference, weight and length measurements from approximately birth to approximately 15 months of age? (or if not, would her pediatrician still be around to help with that?).

That would be of enormous help in this study. I'll be wrapping up the details this week and can shoot it over to you (or, actually, I guess I'll be announcing it. Doy).

Thank you so much! I am also FASCINATED by your sister having pseudo-tumor cerebri. How is she doing now?

Thank you!

Sorry, I'm in early geezerhood so I'm well beyond the age bracket you're looking for. But I like the idea of studies being done by individuals who have a personal interest in finding answers. I think real success is more likely to come from such individuals than from pharmaceutical companies whose primary interest is the bottom line.

Ha! Well thank you for considering it, David! (And be careful who you're calling a geezer - as I stare 54 in the face).

I'm sure you are right - individuals rather than drug companies.
FOR SURE.
Thanks....

DrDiana wrote:Ha! Well thank you for considering it, David! (And be careful who you're calling a geezer - as I stare 54 in the face).

I'm sure you are right - individuals rather than drug companies.
FOR SURE.
Thanks....

Don't worry. At 57 you're a long way from geezerhood. Anyway I only apply that term to myself. Just like you, I have a somewhat bizzare sense of humor.