This Is MS Multiple Sclerosis Knowledge & Support Community

After my balloon angio of both IJVs and several areas of Azygos i was given a script for a daily Heperin shot for 21 days,

i have been doing the daily Heperin shots and was wondering whether this is sufficient and to not take any blood thinners after the 21 days?

thanks
DC10

What did your IR advise?

Some continue on with regular or baby aspirin.

There is not yet a consensus on what the best post-procedure anticoagulation regimen is or isn't....

The IR just said to take the 21 days of Heperin, i mentioned taking Aspirin and he said it was up to me but not essential, just wanted others opinions,

as it seems in a lot of cases the patients are more 'clued' up on CCSVI than the doctors


Am i right in thinking the anticoagulants like heperin only prevent the clotting of blood as a result of the dilation of the vein and the body seeing this as injury that requires blood coagulation?

do mobility symptoms benefit from anticoagulants?

My IR advised to take "baby" aspirin (81mg) indefinitely. So far so good no clotting issues, etc.

Studies have shown that the smaller dosage is just as effective as regular dosage for preventing heart problems with greatly reduced stomach issues.

Donnchadh

Answer - it depends on your vascular condition before venoplasty. CCSVI Alliance website has sound advice and there are other threads on TiMS.

MarkW

It seams that having a stent increases your risk for thrombosis. Follow what your doctor says. Ask if you should be taking asprin.

dc10 wrote:Am i right in thinking the anticoagulants like heperin only prevent the clotting of blood as a result of the dilation of the vein and the body seeing this as injury that requires blood coagulation?

This is correct.

do mobility symptoms benefit from anticoagulants?

No. The anticoagulants are prescribed to hopefully protect against thrombosis as a complication of the injury done to the vein wall by the ballooning.

Are you inclined to continue on with baby aspirin? There is some reason to believe that aspirin can help protect against intimal hyperplasia although this might be most true the week before and the week after the angioplasty.

There has also been some research by the Mayo clinic suggesting that aspirin has a mild positive effect improving MS fatigue.

It is unusual for a patient to be prescriped heparin post-procedure, that is very strong.

I took aspirin today, as well as other supplements (coq10, garlic, ala, milk thistle, curcumin, green tea extract, etc.) I am nearly four months post-procedure.

i might take baby aspirin cece but i think i will see how i am for 1-2 weeks after stopping the Heperin shots (last one was today),

then after 1-2 weeks i will do a trial of baby aspirin and moniter any chnges,
if theres positive changes from aspirin then i will continue.

i tried green tea extract but after severakl weeks found it made my legs weaker, when i stopped this improved.
same with milk thistle,
but i guess it affects everyone differently


i thought it was common to be given heperin post procedure and was an efficient safety procaution?

Lovenox or plavix are more common. There's also Arixtra, Coumadin, aspirin only, and nothing at all! Arixtra and lovenox are heparin-like.

The name of the shots i was prescribed for 21 days was 0.6ML FRAXIPARINE , http://www.medsafe.govt.nz/profs/datash ... ineinj.htm

dc10 wrote:The IR just said to take the 21 days of Heperin, i mentioned taking Aspirin and he said it was up to me but not essential, just wanted others opinions,

as it seems in a lot of cases the patients are more 'clued' up on CCSVI than the doctors


Am i right in thinking the anticoagulants like heperin only prevent the clotting of blood as a result of the dilation of the vein and the body seeing this as injury that requires blood coagulation?

do mobility symptoms benefit from anticoagulants?

i doubt that you were actually given heparin. Can you tell us exactly what the drug is?

Cece wrote:Lovenox or plavix are more common. There's also Arixtra, Coumadin, aspirin only, and nothing at all! Arixtra and lovenox are heparin-like.

anticoagulation will be a topic of the patient day at the NYC ccsvi symposium july 15

drsclafani wrote: i doubt that you were actually given heparin. Can you tell us exactly what the drug is?

I am in Europe and the drug was - 0.6ML FRAXIPARINE