Sticky: CCSVI Patient Tesimonials
Posted: Thu Jun 23, 2011 8:50 am
Hi Everyone,
My name is Kelsey, I'm 25yrs old and am here on behalf of my mother Arlene, 56, who has been suffering from very advanced PPMS for the last 30yrs. She now only retains minimal functioning of her right arm. Upon a recent trip to Barrie, Ontario she had the doppler scan done and was surprised to learn that 3 out of 5 veins are significantly narrowed. The doctor that she saw there gave her a list of treatment centers in North America that are currently doing the CCSVI procedure, but she has asked me to reach out to patients who may have already had it done to find out how life has been for them since (relapses, pain, benefits, etc). Maybe it is unlikely that I will find anyone who was as advanced as she is now, when they did the procedure, but I don't care. I want to know everything first hand and am really hoping that this is the place to find the information that I am looking for. My mother is a prisoner of her own body and mind, and this may very well be her one and only chance at fighting this horribly cruel disease and I need her to do it, but I need your help first, so any information would be greatly appreciated.
Thank you!
Kelsey
My name is Kelsey, I'm 25yrs old and am here on behalf of my mother Arlene, 56, who has been suffering from very advanced PPMS for the last 30yrs. She now only retains minimal functioning of her right arm. Upon a recent trip to Barrie, Ontario she had the doppler scan done and was surprised to learn that 3 out of 5 veins are significantly narrowed. The doctor that she saw there gave her a list of treatment centers in North America that are currently doing the CCSVI procedure, but she has asked me to reach out to patients who may have already had it done to find out how life has been for them since (relapses, pain, benefits, etc). Maybe it is unlikely that I will find anyone who was as advanced as she is now, when they did the procedure, but I don't care. I want to know everything first hand and am really hoping that this is the place to find the information that I am looking for. My mother is a prisoner of her own body and mind, and this may very well be her one and only chance at fighting this horribly cruel disease and I need her to do it, but I need your help first, so any information would be greatly appreciated.
Thank you!
Kelsey