This Is MS Multiple Sclerosis Knowledge & Support Community

Wow I have visited this thread for the first time in quite awhile and I am not sure where the critical/neurtal perspectives are. Initially I thought this was would be a place many of us could go to openly discuss CCSVI without the typical crowd getting bent out of shape but I see this has not been the case. For the record, since my user name is associated with the start of this thread, I have seen no additional proof over the last three years to change my mind about CCSVI. During my time with MS(like a good friend right? ) I have seen many "radical" breakthroughs that people become passionate, almost militant, about eventually be proven to be nothing more then junk science. What I have seen happen and the sad part, at least for me, is when people feel being right about the theory is MORE important then the people effected by MS.

I have visited here for several years but have only commented once or twice. I try to avoid getting throttled when ever I can. I decided to read the posts from a couple of years ago and just realized that i'm probably the woman in the video that was mentioned some time ago who demonstrated the eye tracking issue. I thought someone might be interested to know that I am asymptomatic for MS with the exception of heat intolerance. After almost two years I have put aside the "placebo effect" quandry.As always this is only MHO.

lol
congrats mammananny!! & thanks for the update.

mammananny, there's also the TiMS tracking thread, in case you'd care to provide that update formatted for compatibility/comparison with other members' reports.

For what it is worth - I have had MS for 33 years, had all the drugs, needles etc, have been at deaths door, and back again.
I know the symptoms of MS pretty well.
I have angioplasty for CCSVI four times, and after each procedure, all that is left of my MS is drop foot and a limpy leg.
I have come to the conclusion (in my opinion only) that the symptoms of CCSVI Are MS.
The symptoms that I am relieved of post angio for ccsvi are :-
Gross fatigue, unreliable bowel/bladder, dizziness/lack of balance, all over stiffness, heat intolerance, sore lower back, sore base of skull, weak/unsteady tingling hands, vision problems, food/drink catching when swallowing, numb & "buzzing" lips, weak posture, feeling out of sorts, tiny & messy hand writing, short term memory impairment, headaches/eye aches, weak arms.
So, in my experience & in my mind, the above symptoms pretty much embody what MS is.

When these symptoms return, I don't think the treatment has not worked ... I just wish a stent maker would develop a specialised stent for jugular & azygous, so the benefits can be maintained.

I am waiting for Professor Slavin in Tel Aviv to offer his trans-differentiated mesenchymal stromal stem cell treatment, to try and regenerate oligodendrocytes in the damaged leg.

again, to the tracking thread please, tracker. your info is important but this topic is not the appropriate place for it.