CCSVI may NOT be your answer
Posted: Sun Aug 14, 2011 4:03 am
Hi!
I think everyone knows that I believe that misdiagnosis is very possible as so many crossovers which I have looked into to elliminate from my particular case, hughes, lupus, lymes, m.e. etc the possible epstein barr link.
The conclusion that I came to is the reason why I cant walk, couldnt co ordinate with a walking stick, couldnt stay on my feet, had no resistance in leaning or holding onto things these are my facts (so cese no need to comment ok) unless you think I lie. I am NOT ok.
Over a ten year or more period my spine has twisted due to a tiny bone being out. I see the body as a piece of engineering, and if this (the Atlas) is a fraction of a mm out it renders the whole system useless.
CCSVI and its treatments yes WILL aleviate certain issues particularly blood circulation and also have a placebo effect as regarding nervous tension/stress related isues that effect mobility.
If you are LIKE me misdiagnosed on a possitive MRI (again my FACT) and you have mobility problems, spasm, tremor or l,hermittes, circulation issue, vision issues . Then your Atlas could be misaligned.
In my opinion CCSVI treatmets will NOT if you Atlas is misaligned, get you out of your wheelchair ok, it aleviates a SYMPTOM does NOT do anything else.
CCSVI treatmentsa are not relevant to me or anyone similar ok, it is NOT the be all and end all ok. And newly diagnosed must be so overwhelmed by the incessant banging on about one size fitting all, because life isnt like that, varients do happen,mistakes DO happen.
Debate discussion and a pondering over perhaps several different issues is good and healthy. But will NOT happen when the obsession with CCSVI treatments exists. The narrowing does happen but allow others to explore alternative, else we learn nothing.
OK my last post completed
Thanx
Fiona
I think everyone knows that I believe that misdiagnosis is very possible as so many crossovers which I have looked into to elliminate from my particular case, hughes, lupus, lymes, m.e. etc the possible epstein barr link.
The conclusion that I came to is the reason why I cant walk, couldnt co ordinate with a walking stick, couldnt stay on my feet, had no resistance in leaning or holding onto things these are my facts (so cese no need to comment ok) unless you think I lie. I am NOT ok.
Over a ten year or more period my spine has twisted due to a tiny bone being out. I see the body as a piece of engineering, and if this (the Atlas) is a fraction of a mm out it renders the whole system useless.
CCSVI and its treatments yes WILL aleviate certain issues particularly blood circulation and also have a placebo effect as regarding nervous tension/stress related isues that effect mobility.
If you are LIKE me misdiagnosed on a possitive MRI (again my FACT) and you have mobility problems, spasm, tremor or l,hermittes, circulation issue, vision issues . Then your Atlas could be misaligned.
In my opinion CCSVI treatmets will NOT if you Atlas is misaligned, get you out of your wheelchair ok, it aleviates a SYMPTOM does NOT do anything else.
CCSVI treatmentsa are not relevant to me or anyone similar ok, it is NOT the be all and end all ok. And newly diagnosed must be so overwhelmed by the incessant banging on about one size fitting all, because life isnt like that, varients do happen,mistakes DO happen.
Debate discussion and a pondering over perhaps several different issues is good and healthy. But will NOT happen when the obsession with CCSVI treatments exists. The narrowing does happen but allow others to explore alternative, else we learn nothing.
OK my last post completed
Thanx
Fiona