re: progressive MS not assoc, with CCSVI
Posted: Sun Aug 21, 2011 6:56 am
I dont know why the previous topic was locked,
but from my point of view, the results of the study is complete bullshit!
I'm one of the lucky 10% with primary progressive, and I had procedure done 4 months ago. 3 veins blocked and my edss score has passed from 5.5 to 4, and it was assessed by my neurologist. Idont have major new improvment since but my legs are going stronger because now I have enough energy to train them, or to work in my yard.
I even restarted to do whitewater kayaking since the operation, and I'm carying my 35pounds boat by myself into trails. Before I wasnt capable to walk with a grocerybag on a floor, so walking with something heavy on steep hard ground is a major improvement...
Im just tired to hear negative study done in 4 months by some neuro that are not trained to look at veins...
its like calling an electrician to repear a leak in a pipe!
but from my point of view, the results of the study is complete bullshit!
I'm one of the lucky 10% with primary progressive, and I had procedure done 4 months ago. 3 veins blocked and my edss score has passed from 5.5 to 4, and it was assessed by my neurologist. Idont have major new improvment since but my legs are going stronger because now I have enough energy to train them, or to work in my yard.
I even restarted to do whitewater kayaking since the operation, and I'm carying my 35pounds boat by myself into trails. Before I wasnt capable to walk with a grocerybag on a floor, so walking with something heavy on steep hard ground is a major improvement...
Im just tired to hear negative study done in 4 months by some neuro that are not trained to look at veins...
its like calling an electrician to repear a leak in a pipe!