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ccsvi feasability

Posted: Sat Sep 17, 2011 10:37 pm
by jsm6252
I've read lots about ccsvi good and bad.
what is the general consensus about it?

No consensus

Posted: Sun Sep 18, 2011 9:04 am
by MarkW
There is no consensus on CCSVI. It is a personal choice usually governed by your approach to risk and do you have sufficient funds to go with your choice.
I assess that balloon venoplasty is a low risk compared to progression of my MS. I have sufficient money to have had balloon venoplasty on two occasions (June 2010 and June 2011) worth it for me.
Consensus takes a long time to acheive.

MarkW

Re: ccsvi feasability

Posted: Sun Sep 18, 2011 9:47 am
by Cece
I agree with Mark, I don't think there is consensus yet among patients, between neurologists and IRs, and among IRs themselves. Although I think most IRs would agree in general that blocked blood vessels contribute to abnormal flow and that they have the tools to fix this.

For me it was covered by insurance, so funding was not an issue. I had severe blockages and immediate improvements.

Re: ccsvi feasability

Posted: Tue Sep 20, 2011 3:24 pm
by jsm6252
thankyou for your comments

Re: ccsvi feasability

Posted: Sat Sep 24, 2011 1:09 pm
by frodo
jsm6252 wrote:I've read lots about ccsvi good and bad.
what is the general consensus about it?
CCSVI is a venous condition whose existence has never been questioned by any serious article. About the question whether CCSVI can cause MS or any other problem at all, no consensus has ever been reached. You will have to read the research articles and reach your own conclusions.

Re: ccsvi feasability

Posted: Sat Sep 24, 2011 1:56 pm
by Lyon
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Re: ccsvi feasability

Posted: Sat Sep 24, 2011 3:50 pm
by IHateMS
what is accomplished by your CONSTANT negativity? Gets your rocks off or what?

Re: ccsvi feasability

Posted: Sat Sep 24, 2011 6:37 pm
by Lyon
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Re: ccsvi feasability

Posted: Sat Sep 24, 2011 6:58 pm
by Cece
It is not true that hope alone supports CCSVI theory. There is evidence of an association between CCSVI and MS. There is precedence in other blood vessels in the body, that they function best when unblocked. My jugulars looked terrible pre-procedure. They looked much better after being treated.

I agree that we need research to prove the results so that this can go forward as evidence-based medicine. It is a treatment that I wish everyone with MS had access to, if they wanted it, and were comfortable with what is currently known and what is currently not known.