I have (like many people, I presume) had the procedure once. It was azygos and jugulars only, no stents, no IVUS. No renals or iliac, May-Thurner's or any other veins. Probably restenosed in at least one IJV. Still have deep cerebral vein problems, I think.
You will not get me to say anything against it, as it did help me, and the benefits, while partly gone now, are still there to a large extent, for me. I believe it saves lives, when they are at risk from "MS" or CCSVI. There is also another good thing it is probably enabling, in my one-man anecdote.
I am 57, and assessed at EDSS 6.5-7. I have three stents in my chest from angioplasty after a heart attack. I may still be 'progressing'. I wouldn't know without MRI. I have gone from a wheelchair back to my walker. There is something else, and I can't tell you whether this is due to the procedure or not: I am getting stronger and faster. I am now at a gym, threatening to be there 3 times a week. When I can't go I try to do some homework. Where I regressed and could not improve my walking or strength for some years, I am walking faster now and definitely can move more weight on the machines at the gym. My atrophic muscle mass is starting to return. I know many cannot afford these high-tech things, but if you can do it safely, I recommend weight and aerobic training. I may walk with a cane again yet.
I haven't fallen for months. Haven't badly bruised in maybe six. That is partly balance and partly speed (I can catch myself). I was black and blue, from nearly daily serious falls, just over a year ago.
My recumbent tadpole trike is very low to the ground. A couple of years back it was a very dangerous and time-consuming operation just to get in and out. Now it takes seconds, I squat in and out, and I can mostly do my own cleat shoes. I usually accept help, because I don't have enough strength or feeling in my left lower leg. I
can stand the hot sun because I use a soaking wet do-rag on my head, and a neck cooler which has water-retaining gel crystals, also fully wet.
I did get a skin infection from going backwards into a ravine when my chain came off going uphill.
The trainer, Triana, was in a car accident as a teen, and couldn't walk. By studying kinesthesiology, and exercise, she has brought herself nearly to 100%. She still wears an AFO sometimes, but not often. Kinesthesiology, in spite of what Snopes says, is like physiology, and there are degree-granting schools that offer it in Canada.
I still have lots of problems, which take a terrible toll on my family, too, but I am working on it
