This Is MS Multiple Sclerosis Knowledge & Support Community

juefaz wrote:Hi dr amir
I came for a consultation with you around two years ago and was and still am very interested in the work you do, I have relapse and remitting ms and had had ccsvi treatment about 8 months before I came to see you, I didn't think I had much improvement from the ccsvi so was a bit dubious at the time to spend even more money on having my jaw realigned, I had started chiropractor treatment around the same time I came to see you as I definitely think the connection with ms is more to do with alignment of the jaw, spine etc. as I had just started chiropractic treatment I wanted to do one thing at a time so have continued with that for the last two years, I've had lots of relief from initial problems I had with my neck, shoulders and arm. The only thing it has never helped with is my walking which to be fair to the chiropractor she never said it would, in fact in the beginning she didnt think she would be able to help me very much at all which she told me from the start but we decided to try, she xrayed my whole spine and c spine and I have a lot of problems, I have fusions in my c spine,I also have 2 curvatures and a narrowing at L5 I think, the fusions in the c spine seem to be confusing to the chiropractor and my neuro they both asked if I had a bad accident ever which I haven't, so they've come to the conclusion they are probably congenital, (we also have scoliosis in the family) another thing I have on my c spine which showed up on MRI is a syrinx which is a kind of bubble of Csf. My neuro found the syrinx which he also thinks may have been there for years but I don't think he really know. Now considering I have all these problems I can still walk and I still work in a physical job, Up until 6 months ago I wasn't even using a stick but the last few months I seemed to have progressed a bit and I now use a stick mainly for balance really. I do not and have never taken DMD's all I take is LDN which I have been taking for 3 years and I think has helped me, my neuro offers me DMD's each time I go but I refuse as I don't think they will help as I said at the beginning I think MS is more to do with alignment, veins, circulation etc and the dMD's can't help that. Because my walking has determinate s over the last few months I have been researching again and have been reading about a drug called ampyra which actually seems to make more sense to me for my walking problem as it is a potassium channel blocker which can give better nerve conduction, I'm considering trying it as apparently if its going to work it works within a month. This is the stage I'm at at the moment but after just reading everything that's been said on here a light suddenly went on in my head, around 6 months ago I stated having some dental treatment I've had a back tooth extracted I think it was a wisdom tooth, I've also had two root canal one quite large now I can't remember exactly if all this coincided with my walking deteriorating but I think it was all around the same time, so my question is do you think this dental work could have interfered with my walking? You did say when I saw you my jaw was misaligned and would need a brace so could this extra work I've had done made things worse? I'm in to minds now wether to give the ampyra a try or maybe come back to you, would you please give me some advice as I don't want my walking to deteriorate anymore. Thank you

Rosegirl wrote:
Somehow, each of us with our unique physical challenges has gotten lumped together in a basket called MS, probably because we were sent to a neurologist.

Rosegirl wrote: Somehow, each of us with our unique physical challenges has gotten lumped together in a basket called MS, probably because we were sent to a neurologist. Had we started with a neuro dentist or a chiropractor and then found our way to CCSVI (if necessary), our lives and bank accounts would be an entirely different story.

Amir wrote:

Rosegirl wrote: Somehow, each of us with our unique physical challenges has gotten lumped together in a basket called MS, probably because we were sent to a neurologist.

An astute observation!

CureOrBust wrote:

Amir wrote:

Rosegirl wrote: Somehow, each of us with our unique physical challenges has gotten lumped together in a basket called MS, probably because we were sent to a neurologist.

An astute observation!

And yet everyone with this MS diagnosis that has come to you has been "labeled" as having a jaw misalignment. People in glass houses should be a little more careful when throwing stones.

CureOrBust wrote: And yet everyone with this MS diagnosis that has come to you has been "labeled" as having a jaw misalignment. People in glass houses should be a little more careful when throwing stones.

CureOrBust wrote:

Amir wrote:

Rosegirl wrote: Somehow, each of us with our unique physical challenges has gotten lumped together in a basket called MS, probably because we were sent to a neurologist.

An astute observation!

And yet everyone with this MS diagnosis that has come to you has been "labeled" as having a jaw misalignment. People in glass houses should be a little more careful when throwing stones.

februaryrichard wrote:For those in America who are interested in having what I believe to be the closest thing to Dr Amir's, you should definitely check out Dr. Gerald Smith. He has done many seminars and is very knowledgeable.

His website: http://www.icnr.com/

Also, here is a link to a very informative seminar he did a couple of years back on the whole body-mouth connection:

He also treats bicuspids 'amputation' retraction orthodontics case using the ALF to expand the maxilla.

februaryrichard wrote:For those in America who are interested in having what I believe to be the closest thing to Dr Amir's, you should definitely check out Dr. Gerald Smith. He has done many seminars and is very knowledgeable.

His website: http://www.icnr.com/

Also, here is a link to a very informative seminar he did a couple of years back on the whole body-mouth connection:

He also treats bicuspids 'amputation' retraction orthodontics case using the ALF to expand the maxilla.

EJC wrote:Also it's ideal if someone completely independent to Dr Amir is treating jaw and teeth related problems and arriving at similar outcomes.

CureOrBust wrote:

EJC wrote:Also it's ideal if someone completely independent to Dr Amir is treating jaw and teeth related problems and arriving at similar outcomes.

I did a search across his siute, and all the references I found regarding MS were nutritional and toxicity related, not Jaw Asymmetry. So I would say he has NOT come to similar outcomes as Dr Amir.

EJC wrote:Dr Amir actually knows Gerald Smith, he's met him and has a reasonably good grasp how he operates as a dentist.

I had a chat with Dr Amir about this thread yesterday when Emma was seeing him for an appointment. It thought it was great that someone completely unconnected with Dr Amir and based on a different continent was treating people for jaw and teeth issues as it certainly gives US based people someone to talk to over there.