This Is MS Multiple Sclerosis Knowledge & Support Community
Welcome to This is MS, the leading forum for Multiple Sclerosis research and support. Join our friendly community of patients, caregivers, and researchers celebrating over 20 years of delivering hope through knowledge. https://www.thisisms.com/forum/
Emma has been struggling recently with leg and back pains, but these were more like cramp/sciatic pain than the neuralgic pain she'd been getting in the past. Uncomfortable but not excruciating like before.
We'd put this down to some of the exercise and massage she's been getting recently as she continues to rehabilitate her legs using sports massage therapy. Emma's walking is undoubtedly improving as was commented by more than one friendly face we met at Amir's this week.
It's been about a month since Emma saw Amir and her brace need a little adjustment. Plus in the back of your mind you wonder of the pain is being caused by the teeth not being where they need to be or a small adjustment to the brace.
What we didn't expect to find when we arrived at Amir's was Emma's Atlas was out of alignment and as a result of this her hips out of alignment. So before any fettling of the brace was undertaken Emma's C1 was addressed and persuaded back where it should be.
We were not quite sure why it had moved, but then remembered Emma had an awkward fall last week whilst in the garden and had landed quite heavily on her side - it must have been that causing the issue.
Emma's Atlas was corrected 48hrs ago and 90% of the back/leg pain has been removed.
Emma's single biggest problem now is eyesight - but I need to start a new thread on that particular subject.
EJC wrote:We'd put this down to some of the exercise and massage she's been getting recently as she continues to rehabilitate her legs using sports massage therapy. Emma's walking is undoubtedly improving as was commented by more than one friendly face we met at Amir's this week.
Did she engage in PT before Amir's treatment?
EJC wrote:What we didn't expect to find when we arrived at Amir's was Emma's Atlas was out of alignment and as a result of this her hips out of alignment. So before any fettling of the brace was undertaken Emma's C1 was addressed and persuaded back where it should be.
EJC wrote:We'd put this down to some of the exercise and massage she's been getting recently as she continues to rehabilitate her legs using sports massage therapy. Emma's walking is undoubtedly improving as was commented by more than one friendly face we met at Amir's this week.
Did she engage in PT before Amir's treatment?
Not to the same degree she is now. Emma's fatigue levels pre Amir's treatment were such that only very limited PT was really possible. Sp PT has ramped up considerably as Emma's physical well being has improved.
EJC wrote:What we didn't expect to find when we arrived at Amir's was Emma's Atlas was out of alignment and as a result of this her hips out of alignment. So before any fettling of the brace was undertaken Emma's C1 was addressed and persuaded back where it should be.
Was this performed by Amir or an AO chiro?[/quote]
Amir is trained to perform these adjustments. He trained with these people in Germany:- http://www.atlasbalance.com/
I have been following a few threads here and I note the amazing improvement in the MS symptoms using the COX7 table or similar models.
You may wish to find a nearby practitioner who are more easily available in the USA while I could only find one in the UK:
Amir wrote:I however must emphasize the importance of orthodontic and TMJ asymmetry corrections concomitantly.
When I first visited my current dentist, they took a full 360 degree X-Ray of my jaw. If I PM or email you the image, could you remotely review for any asymmetries?
Amir wrote:I however must emphasize the importance of orthodontic and TMJ asymmetry corrections concomitantly.
When I first visited my current dentist, they took a full 360 degree X-Ray of my jaw. If I PM or email you the image, could you remotely review for any asymmetries?
Its a similar XRay to the one found at:
But this one is not mine.
Thanks in advance.
Hi
The radiographs cannot show any asymmetries unless the asymmetry is extremely severe.
The asymmetries are very subtle in most patients.
Is there a special kind of dentist that is trained to do what you do? My general dentist doesn't do anything that you described.
I was recommended to a TMJ specialist, but since I never suffered any pain, he made a very strong point of telling me that he doesn't treat neurologic patients, and he thought any dentist that claimed to do so was a charlatan and should be avoided at all costs.
Luckily, Dr. Williams in Canada (see When CCSVI fails, try AO and/or the Dentist) called him and they now seem to be on the same page.
Do you have any suggestions on finding a dentist for the folks out in TIMS land that don't have the cab fare to visit you in England?
It is really great to hear of Emma's progress. I wish we could have run into you guys there, it has been almost a year since we met you at the outset of our London adventure. My progress has been slow and I'm sure I need a lot of therapy/exercise to get moving again. Fatigue was a big ugly part of it but also boredom. It is mindnumbingly boring to stand around unable to actually 'do' anything, so much more interesting to sit with a computer especially when I've learned so much on sites like this. But sitting all of the time just creates more problems. I started sitting all day for a much needed job in 2010 and have only lost function in my legs since then. I think that even though the progress has been slow and subtle for me, it is profound. After 6 months of treatment, I felt it was a good idea to plan a family summer holiday requiring a 20 hour drive. I didn't think it was a good idea to go to a local coffee shop, a year ago! So even though I am not yet walking better, I am better than last year and looking forward to next year.
I think we missed you by no more than a hour or so. It's hard to believe that nearly a year has passed. It's great to hear you're improving.
What you describe is not dissimilar to Emma. Her fatigue was debilitating to a degree that made only limited therapy/exercise viable, combined with the neuralgic pain and she was caught in an ever decreasing circle of muscle atrophy and fatigue.
Amir's treatment has removed vast elements of Fatigue and Neuralgia. Enough to allow a much higher degree of therapy than previously possible.
It's the therapy that's now helping Emma improve, but only made possible by the treatment for her TMJ and atlas issues.
With Emma we found sports massage (deep tissue massage) did the trick. A half hour twice a week for the first 4 weeks, then an hour every 5-6 days for a few more weeks. Now shes at one hour of sports massage every 10 days plus exercises to keep things moving in between times.
It's all about getting blood flow back into those underused muscles and basically learning to use them again.
Is there a special kind of dentist that is trained to do what you do? My general dentist doesn't do anything that you described.
I was recommended to a TMJ specialist, but since I never suffered any pain, he made a very strong point of telling me that he doesn't treat neurologic patients, and he thought any dentist that claimed to do so was a charlatan and should be avoided at all costs.
Interesting.
Charlatan!
It is usually Snake oil salesman!
Or perhaps that is what the neurologists call any alternative treatment.
My 30 plus recovering patients through symmetry treatment do not matter a hoot!
Please visit this website and amongst their members you are sure to find a dentist with some brains. US dentists are second to none and perhaps need a slight nudge.
As you have seen, we get passed from place to place, from one type of doctor to another and many of us spend years without finding someone who can help us. So many of us only know about general dentistry, and we can't afford the time or money to pick doctors at random and hope they might help us.
Could you be more specific about what we need to look for in terms of credentials or training? Should we look for TMJ specialists? Something else? The site you recommended asks what qualifications we need in a doctor, and how are we supposed to know?
Also, are there any scientific papers or articles in professional journals we should bring along to increase the odds that they'll know what to do to help us?
We are very motivated individuals, but we are also "civilians" so we are the least educated. That makes for a perilous journey.
I think a Stickie should be created which summarizes:
1. WHO specifically we need to approach (e.g. Neuromuscular/TMJ specialist).
2. WHERE to look/find such a dentist (trade association/school).
3. WHAT documentation we should present.
As you have seen, we get passed from place to place, from one type of doctor to another and many of us spend years without finding someone who can help us. So many of us only know about general dentistry, and we can't afford the time or money to pick doctors at random and hope they might help us.
Could you be more specific about what we need to look for in terms of credentials or training? Should we look for TMJ specialists? Something else? The site you recommended asks what qualifications we need in a doctor, and how are we supposed to know?
Also, are there any scientific papers or articles in professional journals we should bring along to increase the odds that they'll know what to do to help us?
We are very motivated individuals, but we are also "civilians" so we are the least educated. That makes for a perilous journey.
Thanks,
For a dentist to claim that he can cure any illness is like signing off ones career because of the stranglehold big pharma and the regulatory medical authorities have on illness.
Illness = Drug
and Nothing else!
-unless one wants to be struck off or go to jail.
My experience shows that some 60 illnesses have absolutely nothing to do with medicine and yet medicine is what most are brainwashed to seek.
In the words of one of the most learned men of the last century Dr Thomas Szasz:
"Formerly, when religion was strong and science weak, men mistook magic for medicine;
when science is strong and religion weak, men mistake medicine for magic"
To get out of the rut and end suffering some brave steps have to be taken by some dental professionals which is not easily accomplished. I fail to see how any dental professional can openly help you. He will be restricted to saying that he is treating TMD and any other benefit has to be treated as a bonus.
I would want it to be out in the open that a dentist can freely treat ME/CFS, FM, IBS, Crohn's. Ulcerative Colitis, Migraines, fatigue, neck pain, back pain, sciatica, MS, and the more obscure Visual snow, MSA, RSD and countless other symptoms and illnesses.
How this can ever take place baffles me.
Any suggestions?
I shall search for some brave practitioners in the USA and let you guys know in the next week when I am on holiday.