This Is MS Multiple Sclerosis Knowledge & Support Community

Yes it is difficult to explain. I know this is a long slog, looking forward to the end of 12 months to see where Emma is and how she's progressing.

A little bit at a time is what we're hoping for.

When I had my front tooth pulled due to a variety of insolvable problems, I later found out that it was affecting my skull movement, effectively preventing the plates of the skull from even slight movement. And the front teeth are on the kidney meridians and it was affecting my bladder function! (Look for tooth/organ charts that explain the relationship between the teeth and each organ).





http://www.cranial.org.uk/page5.html

Bridges
Bridges generally cause no problem within the mechanics of the face. The exception is a midline bridge across the two upper front teeth. In this situation the bones of the upper jaw become permanently fixed together, which prevents the normal slight movement between the bones.


http://www.icnr.com/DentalDistressSyndr ... drome.html

Merlyn wrote:
Bridges
Bridges generally cause no problem within the mechanics of the face. The exception is a midline bridge across the two upper front teeth. In this situation the bones of the upper jaw become permanently fixed together, which prevents the normal slight movement between the bones.


http://www.icnr.com/DentalDistressSyndr ... drome.html

The work of Al Fonder in the field of the quoted "Dental Distress Syndrome" has been absolutely astounding. I met Dr Fonder some 20 years ago at a lecture he was giving in Manchester, England. We were at the time literally reinventing the wheel. Dr Fonder had done all that we were trying to learn decades earlier.

The article you quote makes fascinating reading. His work should have been part of the curriculum in most dental universities but it has never been taken up. Perhaps there would have been far less MS had it been part of the teaching of dentists. There would be fewer drugs prescribed with often dangerous adverse effects to contend with.

I had a temporary bridge that crossed the midline and every now and then it had to be removed for cleaning and each time it was taken out temporarily, I had to excuse myself and go and pee a bucket, it was absolutely bizarre and it was not until I found out about the relationship between teeth and organs from a brilliant dentist that I understood why. I have a class III malocussion, and a small jaw. I would not be surprised if there is a structural element to MS, because veins form around bone. I have a military neck (straight up and down, no curvature). I also have an extra disc in my back (lumbarization), three kidneys. I do not know much about my delivery, but I suspect many many people with MS were difficult deliveries. I was 10 lbs. 3 oz., my mother was diabetic and I was not a cesarean delivery... my poor mom! I do not know whether forceps were used or whether there was trauma, but if cerebral palsy is due to something going wrong during delivery, why not MS!

We're now at 3 months treatment for Emma with Dr Amir.

Two weeks ago Emma had an appointment in Putney to see how the appliances were treating Emma's Jaw and Teeth. Leading up to this appointment Emma was getting a return of the neuralgic pain she'd been suffering.

This has now become an indicator that a new appliance is required due to the existing one having reached the limit of adjustment or limit of treatment for that particular device.

Emma is effectively housebound other than the occasions I take her anywhere she wants to go. To that end she doesn't have to lead a "normal" life, working, communicating, interacting with other people. This has it's upsides and downsides. The downside obviously being depression from such an insular life, the upside meaning prolonged treatment is easier with oral appliances if you're not required to talk to anyone.

So, Emma has progressed nicely according to Dr Amir. Two weeks ago Emma was fitted with more traditional upper and lower fixed braces (with the usual tweaks and custom parts we now expect of Amir) for this next part of her treatment. Within a day the nueralgic pain had again stopped and two weeks on apart from a slight "twinge" every now and again there's been no return.

Emma has not noticed any major physical improvements yet, but then in reality we don't expect any. 15 years of MS isn't going to be reversed in 3 months. Her eyesight has pretty much stabilised though which means travelling anywhere is now a little more comfortable in a car, mainly due to motion sickness being reduced.

Next update April.

April Update.

Today Emma had a check up with Amir, some minor adjustments were made to the existing braces and an impression made to provide a new removeable upper brace to be used in conjunction with the fixed upper and lower (at night). We collect that next week.

Neuralgic pain now pretty much erradicated.

Emma is starting to show signs of a reduction in fatigue levels. The daily afternoon nap is now only occasional. She's starting to get up and hour or so in the mornings before she used to and going to bed a little later than normal without any ill effect.

Also it is worth noting that since seeing Amir, there has been no progression or worsening of any MS symptom at all.

Emma is a superb patient and has admirably contended with any contraption that I have provided. She definitely can look forward to a healthier and happier future.

She is yet another example of having had symptoms which were totally unrelated to the "brain lesions" as she had always been led to believe.

May 2012 - 5 month update.

Treatment continues.

Neuralgic pain is a thing of the past, a horrible distant memory that hasn't given a hint of returning (touch wood).

Emma's fatigue levels are reducing as the months pass, her awake hours were generally up at around 10:30 to 11:00am and bed not much after 9:00pm more often than not with a nap in the middle of the afternoon when everything started shutting down.

Most noticeable was the requirement for the nap stopped, then the "battery" hours extended and Emma now often goes to bed at 11:30 or midnight whilst getting up at 9:30 to 10:00am.

Also she is tired the next day, but not wiped out as she would normally have been and can operate normally.

We are now waiting for some physio to help with muscle atrophy, with the increased enegery levels Emma can now consider some exercise to help walking.

Most importantly, no progression of MS in 5 months.

So far so good.

good to hear of her improvements

thanks for update

Amir wrote: She is yet another example of having had symptoms which were totally unrelated to the "brain lesions" as she had always been led to believe.

Amir this is interesting info. I have believed for some time now that MS is not one disease but several diseases that have similar symptoms but different causes. Perhaps jaw misalignment is one of the diseases. Do you think Emma's brain lesions are the result of Jaw misalignment or does she in fact have MS but that it is not the cause of her problems? Are the brain lesions of no consequence?
I understand that soccer players sometimes have similar lesions but they don't have MS or any other problems.

Thanks
Dave

David1949 wrote:

Amir wrote: She is yet another example of having had symptoms which were totally unrelated to the "brain lesions" as she had always been led to believe.

Amir this is interesting info. I have believed for some time now that MS is not one disease but several diseases that have similar symptoms but different causes. Perhaps jaw misalignment is one of the diseases. Do you think Emma's brain lesions are the result of Jaw misalignment or does she in fact have MS but that it is not the cause of her problems? Are the brain lesions of no consequence?
I understand that soccer players sometimes have similar lesions but they don't have MS or any other problems.

Thanks
Dave

Dave
I personally have serious doubts if there is anything like "MS" or MS being an "autoimmune disease".

Literally everyone I have seen and treated with "MS" was actually a TMJ dysfunction patient. I am anxiously looking for my first "Real MS Patient".

I am currently treating at least 20 "MS" patients. Many of them have had short lived benefits from CCSVI. They all appear to be substantially improving and most symptoms previously labelled "MS related" have disappeared.

I believe that most "MS lesions" are a consequence of CSF leaking into the brain stroma - they are not lesions in the neural tissue as such otherwise the symptoms would persist.

The immune system tries to get rid of this fluid which is in the wrong place but is unable to do so and the deposits aggregate leading to the typical opaque lesions seen on MRI and CAT scans. At autopsy the increased immune function is perhaps wrongly diagnosed as an autoimmune attack.

Imagine taking a slice of pathological tissue around any infective lesion one is bound to see an increased immune function. To go onto interpret it as an autoimmune disease would be pure folly. The immune system needs help - not an assault on its function.

As per your question I have treated very many patients with Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS) and others who present just with jaw problems for very many years. I have never found a real ME or CFS patient either. The common denominator is tooth/Jaw dysfunction and some who also have their Atlas out of line.

I remain to be corrected on my hypothesis

Amir wrote:I remain to be corrected on my hypothesis

Are you saying that the JAW adjustments also clear up the brain plaques (or stop new ones, since you are correcting the leakage of CSF)?

I would think that at least one of your patients would have a neurologist wishing to speak to you if they had found that the MS was actually "cured"? although I wouldn't mention to the neurologist that you do not believe MS exists...

And also, one question just occurred to me. Within your TMJ theory, why is it that MS is most commonly "contracted" in the narrow band of 25-30?

CureOrBust wrote:

Amir wrote:I remain to be corrected on my hypothesis

Are you saying that the JAW adjustments also clear up the brain plaques (or stop new ones, since you are correcting the leakage of CSF)?

I would think that at least one of your patients would have a neurologist wishing to speak to you if they had found that the MS was actually "cured"? although I wouldn't mention to the neurologist that you do not believe MS exists...

And also, one question just occurred to me. Within your TMJ theory, why is it that MS is most commonly "contracted" in the narrow band of 25-30?

I'll add to this conversation as Amir sometimes doesn't put his point across in an easily understandable way.

First time Emma heard Amir say "MS doesn't exist" she was offended, she took it as though he was suggesting there was nothing wrong with her, when what he actually meant was that the collection of symptoms currently refered to as "MS" has absolutely nothing to do with the autoimmune theory that's been slavishly followed and remained unproven in 160 years. Anyone reading this forum has probably reached this train of thought themselves, hence they're here.

Many of the patients seeing Amir (but not all) no longer bother with Neurologists, they aren;'t interested in being specimines to simply monitor or try the latest money making drug trail. I would personally be quite happy to state to Emma's (ex) neurologist that MS doesn't exist as he understands (autoimmune problem solved with drugs) it and that he's spent his entire career barking up the wrong tree. As you can imagine, many are reluctant to even consider this opinion.

Also Amir believes he has part of the answer, not the complete answer. If you met him in person you'd realise his frustration and anger is directed mostly at the drug pushers who inflict more damage on MS sufferes with no real comprehention of what they are doing or what the root cause is.

He also sees many patients diagnosed with "MS" that he belives have other problems such as Parkinsons, ME, CFS etc etc He does not take on every patient who approaches him, only those that he feels he can help.

CureOrBust wrote:

Amir wrote:I remain to be corrected on my hypothesis

Are you saying that the JAW adjustments also clear up the brain plaques (or stop new ones, since you are correcting the leakage of CSF)?

I would think that at least one of your patients would have a neurologist wishing to speak to you if they had found that the MS was actually "cured"? although I wouldn't mention to the neurologist that you do not believe MS exists...

And also, one question just occurred to me. Within your TMJ theory, why is it that MS is most commonly "contracted" in the narrow band of 25-30?

I think no new plaques form. I took an MRI for one patient after 3 years and the plaques were exactly the same as 3 years earlier and after she had been cured. She remains exceptionally well some 10 years on.

If patients can afford to have a pre and post MRI SCAN than I shall appreciate it greatly and it will advance the knowledge.

When neurologists find out that there is an easier way to treat illness they go awfully quiet!

Most illnesses start around age 22 to 25. At 22 the jaw grows maximally and causes the most problems because of asymmetries if present.

Patients also have had their wisdom teeth extracted which multiplies the problem. At 25 the skull sutures start closing and there is another spurt of symptom increase. (this however is open to contention)

Having accidents like whiplash etc does not help.

So, if I am following this correctly, having a whiplash injury could start symptoms and following that with some incomplete dentalwork, ie extractions but no bridge or implants could start a more rapid decline? Then, the remedy would have to address both issues to improve things.