This Is MS Multiple Sclerosis Knowledge & Support Community

dania wrote:Don't you just love those moving diagrams? Being a visual person I find I just get it the moment I see it. A picture is worth a thousand words.

I think you are right dania picture shows all details and prove Dr. Amir theory.

....Most illnesses have this as a common denominator but the expression of the illness is different in different patients. One may have simple headaches while another may have serious Chronic Fatigue Syndrome (An erroneous cooked up entity), and yet another one may be classified into MS (Another questionable entity).

MSers on this thread are more concerned with their own symptoms. It has been proven beyond doubt amongst my patients that many symptoms that they were previously led to attribute to 'brain lesions' had absolutely nothing to do with 'brain lesions'.

As an 'MS' patient of 22 years with copies of MRI scans showing 'a multitude of lesions' to explain the 'neurological damage' by 'demyelination' I can confidently say that I believe Dr Amir is right!
I have been told I have SPMS with EDSS 6.5, need a walking frame to walk. After 6 weeks of treatment with adjustable braces I amazed myself and my family, yesterday evening I stood up and walked better than I have done for 10 years! My walking problems cannot have been caused by the lesions on my brain. Even my last CCSVI procedure, although successful, didn't give me that level of improvement!
Its still early days for this treatment and I can't wait to see what else it brings me.
What I do know for sure is that the current therapies for MS, ie the drugs that are pushed by our neurologists are dangerous immunosuppressants that are more likely to kill you. Not only that, they are developed around an out of date, false paradigm of autoimmunity which was proved false years ago, yet they continue pushing the drugs despite deaths from their use. Get checked for TMJ dysfunction as soon as possible, that's my advice!

jencor69 wrote: As an 'MS' patient of 22 years with copies of MRI scans showing 'a multitude of lesions' to explain the 'neurological damage' by 'demyelination' I can confidently say that I believe Dr Amir is right!
I have been told I have SPMS with EDSS 6.5, need a walking frame to walk. After 6 weeks of treatment with adjustable braces I amazed myself and my family, yesterday evening I stood up and walked better than I have done for 10 years! My walking problems cannot have been caused by the lesions on my brain. Even my last CCSVI procedure, although successful, didn't give me that level of improvement!
Its still early days for this treatment and I can't wait to see what else it brings me.
What I do know for sure is that the current therapies for MS, ie the drugs that are pushed by our neurologists are dangerous immunosuppressants that are more likely to kill you. Not only that, they are developed around an out of date, false paradigm of autoimmunity which was proved false years ago, yet they continue pushing the drugs despite deaths from their use. Get checked for TMJ dysfunction as soon as possible, that's my advice!

The wholesale hijacking of TMJ dysfunction patients into ME, CFS, FM, MS and many other syndromes and mental conditions is truly merciless and astonishing!

I just got home from London and I also can't see how so many 'ms' symptoms can be remedied so quickly if they were truly caused by brain lesions. I have read of people who were diagnosed with ms posthumously because there were extensive lesions found in the brain during an autopsy although they had lived symptom free lives and that just doesn't seem to add up. I don't think lesions are irrelevant, but I also don't think they can be as ominous as we've been told and I can't see anyway they can be responsible for symptoms that can instantly improve. Neuroplasticity allows improvements in function over time as damaged parts of the brain wiring are rerouted, but these are instant changes. I talked with one guy with dramatic walking and balance improvements in just a few weeks and some instant improvements. I went in with that ms-y feeling in my bladder and walked out feeling normal. In fact we drove an hour to Hever castle and spent the afternoon wandering around the grounds sightseeing with just one unhurried bathroom stop that was more from habit. imho, these cannot be caused by brain lesions.

I think this needs research and attention like ccsvi is beginning to receive. Just as when some patients' ms was 'cured' by ccsvi treatment, raises the question of whether their long-standing diagnoses of ms were actually ever correct, these rapid changes also raise questions about the long-standing assumptions about the nature of the symptoms known as ms.

Thekla wrote: I think this needs research and attention

Many others have expressed similar calls for 'proper research'.

Proper research would be that which is altruistic. Altruism is however, a schism between the greed of those seeking exponential wealth brimming with their pretentious remedies and those who seek relief from their afflictions.

I suspect dogmas, deception, greed and invariably a complete and utter distortion of the truth at the hands of those less dedicated to social purpose and professional altruism. Whether these distortions are exercised knowingly, willfully or criminally, I shall leave all of you to be the best judge.

I've also become very skeptical, although the story of ccsvi and the vascular issues that obviously affect many patients does offer hope. The awareness and research has been patient-driven. I think only Schelling, of the early pioneers, has no personal connection to ms. There are researchers and scientists that simply want to find answers and are not afraid to question assumptions but they are usually ignored, if not ridiculed. Obviously there is no money in a drug-free treatment. Patients have to demand answers, and we've all been told it is our destiny and cannot be changed. Patient demand has to reach a critical mass, but that also requires enough knowledgeable practitioners.

I don't know but I am willing to try looking into anything. I have always had problems with learning but i know I had an accident on a trampoline, I didn't land right and my knee so joyfully met my jaw. Thats one, another time was later when I was 12 I was in a car accident and was thrown out of the car, ( back in the day seat belts were not important). So I have had 2 injuries. I was diagnosed with ms at age 21. I am 34 now and I have read this once before but I forgot. So I think it was a hint to go at this again.... I mean I have been on steroids a lot since I was diagnosed and it has caused my jaw to begin to disintegrate so I have a jaw that moves out of place a lot, ( I can get it back in). There is a lot of grinding sounds and clicking when I open my mouth wide. I'm sure I need my jaw to be replaced by now. I am now on Tysaberi and I wonder what I can do now....

Robyn

Robyn, In your place, I'd def find someone to look at your jaw, it seems to affect so much. I never would have believed it, but I got back home (Germany) from London last week and what a difference. Dr Amir gave me a new custom appliance to work on my jaw asymmetry and I feel totally different. Driving to London for treatment is difficult and expensive. We can't afford it but nothing else has helped even close to this. I'm not taking any drugs now except for low dose aspirin as maintenance after ccsvi last year. I've tried the diets with very minimal results---I hoped they were helping a bit. This has very clearly helped. I am finally looking forward to changes. Life is different.

Quote dr. amir> I suspect dogmas, deception, greed and invariably a complete and utter distortion of the truth at the hands of those less dedicated to social purpose and professional altruism. Whether these distortions are exercised knowingly, willfully or criminally, I shall leave all of you to be the best judge


for me the jury is in and they are guilty as charged. "on all counts"!


your participation here is greatly appreciated and hearing the testimonies of your patients is uplifting and gives another ray of hope. but, bittersweet, that your work and knowledge is confined across the pond and unreachable for most health wise, financially or otherwise.---

is there anything in your plans to get others involved or some who are doing this type of dentistry in the states you plan on maybe checking their skills out? reccomending? the phone book has dentist that carry the title--but it's not cheap although worth every penny to be helped. but i'd hate to throw good money after bad and worse yet think after trying and not be any help that the reason it didn't help was because the treating dentist just didn't have what it takes. it would be a hard call.

Quote thekla>I've also become very skeptical, although the story of ccsvi and the vascular issues that obviously affect many patients does offer hope. The awareness and research has been patient-driven. I think only Schelling, of the early pioneers, has no personal connection to ms. There are researchers and scientists that simply want to find answers and are not afraid to question assumptions but they are usually ignored, if not ridiculed. Obviously there is no money in a drug-free treatment. Patients have to demand answers, and we've all been told it is our destiny and cannot be changed. Patient demand has to reach a critical mass, but that also requires enough knowledgeable practitioners

i agree with everything you said. and even the mass that drove the ccsvi was hard to get it to take off and that involved ir's who are what is referred to in mainstream as "acceptable doctors". chiro.'s and dentistry are not accepted into that rhealm of things. although it's better than it was- to get these treatments available to all the fda and ins. co.'s gotta start paying some of the tab--they don't seem to have a problem forking out boo koo bucks yr. after yr. for drugs. where in the long run, chiro. and dentistry is non invasive, safer and a lot cheaper. and as you also stated this also requires enough knowledgeable practicioners. it's like putting a big chunk of chocolate in front of a chocolatholic and telling them you can look--but you can't have a bite.

It's been a while since I posted an update so here we are approaching the end of August.

The two major improvements provided by jaw realignment with Emma have remained, namely a complete eradication of neuropathic/neuralgic pain and a distinct reduction in fatigue.

Walking and gait has not improved, however, that's no surprise. Emma is now 15 years into MS and has very obvious muscle atrophy.

This week we started a course of physiotherapy to build Emma's muscle structure back up and teach her to walk correctly again, not with splayed feet and years of "compensations" and bad habits.

6 months ago the thought of physio would have been absurd, Emma was only months away from permanent wheelchair use.

It's all good. We are at 9 months into treatment with Amir and would not consider stopping.

What you need to understand about Amir's treatment is that he fixes a physical problem, often skeletal, that interacts with nerves and muscles. His treatment is only a third of the answer, the other two thirds is then up to you. Amir has given Emma the ability to rehabilitate herself.

Think of it like repairing a broken arm, Amir is the surgeon that puts it all back where it should be. It's then up to you to exercise, repair and rebuild the tissue back to health. It's no different with Amir. Amir will provide breathing, swallowing and other exercises that are as important as his treatment, without the combined package it's not going to help.

That's also why different patients seem to have faster/slower recoveries. It is like a physical rehabilitation after a car accident, the more serious the damage the longer it takes to repair - so the longer you've had "MS" the longer it takes you to get it all back to normality.

I think many of you will have read this article:

"How the MS Society and neurologists seem to work together in the MS Drugs Industry."

http://dl.dropbox.com/u/66292082/Drugs% ... ociety.pdf

I came across it only last night. I was astounded that the evidence presented by Eustace Mullins in his book "Murder by Injection" holds so very true.

My personal dealings with these supposedly altruistic societies is that they are mostly a front advancing the commercial agenda of their sponsors which seeks exploitation of the sick and have absolutely zilch interest in the welfare of those unfortunate to seek their assistance.

The evidence presented by the above paper about the "Charitable status Society" appears clearly to show that this is perhaps more of a racketeering front and it should be outed and banished for its grossly unscrupulous activities which is doing nothing more than sentencing many people to avoidable incapacity and death. Its' charitable status ought to be immediately reviewed and withdrawn.

I sent them a magazine article where my patient Mary Maguire had presented her case history and how she recovered from her MS through dental treatment. Apparently many other people also sent this to the society. This was 12 years ago. I never heard from them. Now I know. It went straight into the trash can. There was absolutely no enquiry or interest from them.

The above mentioned article mainly talks about the PHYSICAL disturbance to the venous drainage from the cranium as a cause behind MS which is blatantly being suppressed by the MS society.

My personal experience with some 20 patients for whom CCSVI treatment has been largely unsuccessful shows that these patients have another PHYSICAL problem with their jaws and other skeletal asymmetry issues. Every single one is recovering rapidly and some amazingly.

My conclusion is that THERE IS NOTHING LIKE AUTOIMMUNE DISEASE AS FAR AS "MS" IS CONCERNED (as also supported by a lot of scientific evidence) and patients especially those who are newly diagnosed into this despicable nonsense should seek immediate dental and symmetry evaluation to avoid this supposedly "Incurable disease".

Neurologists please note that you are duty bound to refer patients for such evaluation in your differential diagnosis to avoid a charge of negligence.

Unfortunately Amir, we find conflicts of interest in our society at every page we turn.

Money drives everything, every aspect of political, medical and even religious aspects of life are all money driven. It's why so many of us have turned to each other on forums like this to try and cut through the crap and find something that really does help.

For many years, many pwMS have felt that the MS society did not and does not represent their best interests, but then show me a charity run like a corporation that really does work for who it claims to represent.

EJC wrote:Unfortunately Amir, we find conflicts of interest in our society at every page we turn.

Money drives everything, every aspect of political, medical and even religious aspects of life are all money driven. It's why so many of us have turned to each other on forums like this to try and cut through the crap and find something that really does help.

For many years, many pwMS have felt that the MS society did not and does not represent their best interests, but then show me a charity run like a corporation that really does work for who it claims to represent.

The fact is that the media creates the hysteria like "Saddam's weapons of mass destruction" and every one runs to arms. Similarly the same hysteria is created about this "Incurable Multiple sclerosis" and everyone runs for the Frauduzimab!

I have now attended to many "MS" patients. I am pleased to say that I am still looking for that elusive "MS" patient. They have all turned out to be serious cases of Temporo Mandibular Joint Dysfunction who have been enrolled into an illness which is nonexistent and hence have been denied a timely correct intervention.

The fact is that the media creates the hysteria like "Saddam's weapons of mass destruction" and every one runs to arms. Similarly the same hysteria is created about this "Incurable Multiple sclerosis" and everyone runs for the Frauduzimab!

I have now attended to many "MS" patients. I am pleased to say that I am still looking for that elusive "MS" patient. They have all turned out to be serious cases of Temporo Mandibular Joint Dysfunction who have been enrolled into an illness which is nonexistent and hence have been denied a timely correct intervention.

I have been caught up in the massive fraud that is 'my MS diagnosis' for over 22 years now. Words cannot express the anger and emotional pain I feel for those lost 'prime' years of my life which have been spent struggling to accept the inevitable, continuous progression that the diagnosis of MS delivers. In all that time, It has never been suggested to me that I might have a physical asymmetry causing my symptoms, it was never eliminated as a possible differential diagnosis before the MS label was slapped on me. In fact, I never underwent any tests to check for other physical problems - even when I went to see an orthopaedic doctor, before I got the label, who examined me and suggested that I might have a 'stretched nerve', he made no comment about my spine and jaw which must have been out of alignment back then. No, my atlas and jaw asymmetry symptoms were hijacked and enrolled into an illness that 150 years after the first reported case, STILL eludes the doctors and scientists to its cause, and which is unethically accepted as an UNPROVEN autoimmune disease.
After all this time, with my symptoms worsening year on year, with no hope of improvement I am now starting to get better. After only three months of treatment with adjustable braces, my mobility is starting to improve. Slowly but surely my walking is getting easier. I can climb stairs without having to lift my right leg up each step as I did before. Already my walking and gait have improved 20-30%. My 'multitude of MS lesions' cannot have caused my walking problems, heavy legs and spasticity; if they had, I would not have been able, on occasion, to walk completely unaided for the first time in 10 years!
When I am well again, I intend to get the words Multiple Sclerosis deleted from my medical history.