This was sent out, before the twitter-twitch, to members of the Ontario MS Society:
CBC’s The Nature of Things will broadcast a one-hour documentary on
multiple sclerosis and CCSVI entitled /MS Wars: Hope, Science and the
Internet /on Thursday, February 9 at 8 pm on your local CBC stations.
The program will focus on the reaction of people with MS to Dr.
Zamboni’s research on CCSVI and MS and how it could affect their
lives. It will also highlight how social media has become integral to
the campaign for access to treatment in the country, the political
pressure surrounding the topic and insights from Canadians with MS who
sought treatment for CCSVI abroad.
**
**
*References:*
Nature of Things preview: MS Wars: Hope, Science and the Internet
http://www.cbc.ca/natureofthings/episod ... ernet.html
CBC Docs Facebook page
* People living with MS are at the centreof our work and this will
continue to be what drives us as we move through this exciting
phase of MS research. The MS Society of Canada’s mandate is to end
MS and to assist those who are touched by it.
* The MS Society of Canada understands the urgency of coming to
conclusive answers on the topic of CCSVI. We will continue to work
with federal and provincial governments and their agencies to
advocate for safe, evidence-based research to further our
understanding of CCSVI and MS.
* All Canadians living with MS require answers about the potential
risks and benefits of CCSVI treatment. The MS Society of Canada
responded by jointly funding seven clinical diagnostic studies
totaling $2.4 million
http://mssociety.ca/en/releases/nr_20100611.htm with the U.S.
National MS Society and has committed $1 million
http://mssociety.ca/en/releases/nr_20100916.htm towards the
financial cost of a clinical trial.
* The MS Society honoursand respects the decisions Canadians living
with MS make for the benefit of their own health. We acknowledge
and respect that some Canadians living with MS have travelled
abroad to seek CCSVI related procedures and others have decided to
wait for more research.
**
*Social media:*
Facebook and Twitter messages will be shared on Tuesday, February 7 at
3 pm EST. Feel free to share the Facebook message on your division or
chapter Facebook page by clicking on the Share button from the
National page. You can also retweet the Twitter message from the
@MSSocietyCanada account.
Contact Rob Petrollini at
rob.petrollini@mssociety.ca
or ext. 3155 for more information.
**
*Resources:*
http://www.ccsvi.ca/
CCSVI toolkit on Mercury
https://mercure.mssociety.ca/en/tools/c ... /Home.aspx
Social media copy (Facebook and Twitter)
https://mercure.mssociety.ca/en/tools/c ... iaText.doc