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"what part of MS are you the most afraid of?"
Posted: Sun Jul 08, 2012 12:30 pm
by Cece
http://ms.about.com/b/2012/06/30/what-p ... aid-of.htm
The consensus among the readers' comments is that cognitive dysfunction is the biggest fear.
I don't know if that's true for everyone. Physical disability is pretty scary too. But cognitive dysfunction is frightening and unpleasant and disruptive to all aspects of life. Been there, done that... Cognitive dysfunction is also something which seems to respond to CCSVI venoplasty in many people, and which has a logical explanation for why CCSVI venoplasty helps.
Re: "what part of MS are you the most afraid of?"
Posted: Sun Jul 08, 2012 12:54 pm
by tiltawhirl
I've been through the valley, and hands down the biggest fear I have is the loss of hope again. Without hope, all bets are off.
tilt
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 1:05 am
by Robnl
agree!
Second fear for me is to lose the ability to move hands, feet, legs.....as long as you can move these.....there is hope.
I can not walk without help, but i can move/lift my legs etc, i can stand up, can walk behind a walker...
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 8:37 am
by PointsNorth
One more vote for Hope. Even tho my improvements were short-lived, the improvements experienced by others (& myself) makes me think we are now moving down the road to home.
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 9:04 am
by DougL
my partner says losing the ability to walk.
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 9:42 am
by MarkW
For me its not knowing how my MS could progress.
MarkW
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 11:43 am
by Luvsadonut
Not being able to support my child
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 2:03 pm
by 1eye
Can't be afraid of any of those anymore. Even death. Unless my kids get it.
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 4:25 pm
by blossom
that these symptoms someone named ms keep getting thrown in one basket and the causes and treatments are not looked into the way they should be.
Re: "what part of MS are you the most afraid of?"
Posted: Mon Jul 09, 2012 4:29 pm
by HappyPoet
Am most afraid my 19 y.o. daughter has MS.
In addition to having occasional arm numbness and tinnitus, she was just diagnosed with hypothyroidism (enlarged thyroid) which immediately brought to mind DrS's CCSVI case in which IJV collaterals ran through the thyroid.
Re: "what part of MS are you the most afraid of?"
Posted: Tue Jul 10, 2012 3:29 pm
by David1949
1) That my children or grand kids might someday get it.
2) Hopelessness
3) Loss of cognitive ability
4) Loss of physical ability.
Funny thing; if you asked me yesterday I would have said the loss of physical ability was the biggest concern but after reading the comments of others I've changed my opinion to the above.