Welcome to This is MS, the leading forum for Multiple Sclerosis research and support. Join our friendly community of patients, caregivers, and researchers celebrating over 20 years of delivering hope through knowledge.
https://www.thisisms.com/forum/
Cece wrote: I just googled her name to verify the details I remembered from Facebook and what do I find? "Please help me." Ok, that makes me cry.
http://www.gofundme.com/HERE-I-GO-AGAIN
Could this have caused the UTI?"all i do is lay in bed hoping things get better"
An access to care failure. And their perception that she received worse care after the doctors knew she'd gone for the CCSVI procedure? If it's even a possibility, then should we not tell our doctors if we've had this done? How do you know when to seek follow-up for complications of a CCSVI procedure if you're keeping the CCSVI procedure a secret?“They treated her differently when they knew she went abroad, and that’s in my opinion criminal and unethical,” said Walsh.
Roxy ended up dying from an infection that started in her bladder. Garland had asked the doctor to send more medication through their home care nurse, because his wife was bedridden and unable to travel.
“She [their home care nurse] called and he [the doctor] said absolutely not. She said how about a blood test? He said, ‘absolutely not. The only way she’ll get a test is if she comes in or goes to the emergency room’,” said Garland.
She was dead a few days later. The College of Physicians and Surgeons has said that every patient deserves care, no matter their medical history, but ultimately it’s the doctor’s call.
Read it on Global News: Regina widower says his wife' s death was ' needless'
i'm sure the doctor will simply say she refused to go to emergency .tiltawhirl wrote:
I hope this family sues the college into the ground.
tilt
time for a different sort of letter-writing campaign?I have had alot of emails, phone calls about if we can send cards to Vince and family for your sympathy and condolences about Roxane's passing. I have permission from Vince that this is ok and since Rocky didn't want to have a funeral I think this is a good way for us all to show them our love & support and solidarity as an MS/CCSVI Community that we care.
Vince, Tessa and Brianna Garland
27 Cavendish St Regina,Saskatchewan, Canada S4N 1P1
I want Vince and his entire family to know we are here and care
Thanks everyone xo
I dread getting spasms and being twitchy because if I can no longer stand it I take a Baclofen. (in this heat wave I have had one). This invariably makes me lose control of my bladder. I have so far avoided a catheter solution to bladder troubles, but I think they are the source of many bladder infections. I have never had one, but I bet if I started using a catheter I would soon have one.AndrewKFletcher wrote:Cece wrote: I just googled her name to verify the details I remembered from Facebook and what do I find? "Please help me." Ok, that makes me cry.
http://www.gofundme.com/HERE-I-GO-AGAINCould this have caused the UTI?"all i do is lay in bed hoping things get better"
TYVM Cece.Cece wrote:from Michelle Walsh on facebooktime for a different sort of letter-writing campaign?I have had alot of emails, phone calls about if we can send cards to Vince and family for your sympathy and condolences about Roxane's passing. I have permission from Vince that this is ok and since Rocky didn't want to have a funeral I think this is a good way for us all to show them our love & support and solidarity as an MS/CCSVI Community that we care.
Vince, Tessa and Brianna Garland
27 Cavendish St Regina,Saskatchewan, Canada S4N 1P1
I want Vince and his entire family to know we are here and care
Thanks everyone xo
send a card if you can
The tragic passing of Roxanne Garland highlights the lack of follow-up care for and medical isolation experienced by those who have sought treatment for chronic cerebrospinal venous insufficiency (CCSVI) outside Canada.
A key problem is the climate associated with CCSVI. Patients sometimes feel intimidated and even threatened by their physicians. Many feel entirely marginalized.
Minister, a family in Saskatchewan is reeling from the death of a wife and mother. I ask that their grieving not be turned into a cautionary tale about travelling abroad for treatment for CCSVI, but rather, that Roxanne Garland’s memory be honoured with real action regarding follow-up care as her husband is requesting. I believe this issue speaks to one of the fundamental principles underpinning the health care system in our great country, namely that quality health care is a fundamental right of all Canadians.
