This Is MS Multiple Sclerosis Knowledge & Support Community

erinc14 wrote:

Cece wrote:

erinc14 wrote:i was wondering if this was going to get people's attention like w5 did three years ago .

I would have liked for it to be aired in the US and to get that sort of attention here.

you notice nothing big (like 60 minutes or 20/20) has ever been aired in the US about this .

"Glen brought in Annette today for a follow-up visit. Since my last visit with her following the CCSVI procedure, her condition generally appeared stable, and Glen noted that her swallowing remained improved. It was my personal observation today, that she seemed much more responsive to my verbal conversation with her. She made clear eye contact with me suggesting improvement in both her vision and cognition that had been damaged by the severity of her chronic progressive MS. She clearly was trying to respond affirmatively to yes and no questions with appropriate facial movements. I have not seen this degree of attentiveness and responsiveness by her in years. It was quite heartening.

While MS can certainly fluctuate in it's severity in neurological deficits on its own without any intervention, and Annette's case remains one that is advanced and severe, it is hopeful that the improvements noted by Glen, and now myself may suggest some clinical benefit to Annette from the procedure. If the improvements noted are due to CCSVI in a patient with such advanced disease, this gives even more hope for even greater benefit to those patients with chronic progressive MS who have less advanced disease, to stabilize and improve their conditions before their neurological deficits become more permanent and severe."

It was my personal observation today, that she seemed much more responsive to my verbal conversation with her. She made clear eye contact with me suggesting improvement in both her vision and cognition that had been damaged by the severity of her chronic progressive MS. She clearly was trying to respond affirmatively to yes and no questions with appropriate facial movements. I have not seen this degree of attentiveness and responsiveness by her in years. It was quite heartening.

DougL wrote:

It was my personal observation today, that she seemed much more responsive to my verbal conversation with her. She made clear eye contact with me suggesting improvement in both her vision and cognition that had been damaged by the severity of her chronic progressive MS. She clearly was trying to respond affirmatively to yes and no questions with appropriate facial movements. I have not seen this degree of attentiveness and responsiveness by her in years. It was quite heartening.

is it possible that we as caregivers (or Doc's) are also subject to the placebo affect (or should I call it wishfull thinking)?