Re: Apology needed from Cheerleader and Cece
Posted: Sun Mar 12, 2017 2:45 am
Greetings:
I have great respect for the contribution both Cheerleader and Cece have made informing us about the CCSVI work and theory and the entire issue of blood circulation through the brain in MS pathology. Had I known this years ago, I wouldn't need a cane today. We don't need censorship, we need experience and information. It is precisely their lack which led to so many misfortunes and I hold those in the Neurology profession largely responsible for that. The FDA forced the Hubbard Foundation to close their CCSVI data base for no good reason that I can see. If people could see the various outcomes, they could make an informed decision. As for the recent study, Dr Traboulsee is known to oppose the CCSVI idea. According to Dr. Sclafani, the balloon to expand the vein was too small, and all MS cases (RR SP PP) were treated the same even though they are very different. In my opinion those with skeletal obstructions (bone, muscle, artery) shouldn't have their veins ballooned.
As for centenarian100's data, she (?) has a chosen a study of no more than 2 years and all that has been studied is if the drug suppresses the immune response, not MS. Dr. George Eber's long term studies have revealed that these drugs don't work to prevent disability which in his opinion should be the criteria of treatment "success". He believes people are being misled by his own profession (Neurology), and after his study came out, he was totally shocked that the study was ignored. So much for respect for science.
So, bravo Cheerleader and Cece, keep up the good work and thank you.
Regards, Vesta
"
His heresy was thus twofold.
1.The study of 1,000 patients over a 30 year period revealed that relapses are unrelated to long term outcome.
2.His 25 year study of Disease Modifying Drugs revealed they don’t stop descent into disability."
http://www.mscureenigmas.net
I have great respect for the contribution both Cheerleader and Cece have made informing us about the CCSVI work and theory and the entire issue of blood circulation through the brain in MS pathology. Had I known this years ago, I wouldn't need a cane today. We don't need censorship, we need experience and information. It is precisely their lack which led to so many misfortunes and I hold those in the Neurology profession largely responsible for that. The FDA forced the Hubbard Foundation to close their CCSVI data base for no good reason that I can see. If people could see the various outcomes, they could make an informed decision. As for the recent study, Dr Traboulsee is known to oppose the CCSVI idea. According to Dr. Sclafani, the balloon to expand the vein was too small, and all MS cases (RR SP PP) were treated the same even though they are very different. In my opinion those with skeletal obstructions (bone, muscle, artery) shouldn't have their veins ballooned.
As for centenarian100's data, she (?) has a chosen a study of no more than 2 years and all that has been studied is if the drug suppresses the immune response, not MS. Dr. George Eber's long term studies have revealed that these drugs don't work to prevent disability which in his opinion should be the criteria of treatment "success". He believes people are being misled by his own profession (Neurology), and after his study came out, he was totally shocked that the study was ignored. So much for respect for science.
So, bravo Cheerleader and Cece, keep up the good work and thank you.
Regards, Vesta
"
On March 21, 2013 it was announced that Dr. Ebers had been chosen to receive the National MS Society/American Academy of Neurology’s 2013 John Dystel Prize for Multiple Sclerosis. This freed him to give a lecture titled “Critical Review of outcomes used in MS clinical trials” which was posted on You Tube November 4, 2013 by the European Medicines Agency. ...
His heresy was thus twofold.
1.The study of 1,000 patients over a 30 year period revealed that relapses are unrelated to long term outcome.
2.His 25 year study of Disease Modifying Drugs revealed they don’t stop descent into disability."
Previously published on my site MSCureEnigmas.net
http://www.mscureenigmas.net