This Is MS Multiple Sclerosis Knowledge & Support Community

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But it is kind of OK really: they can do it when it is tested and out. At this point it is kind of the adventurous persons jumping in to be lab rats.

Chris no one can accuse you of not being adventurous....

lots of people do not understand it and it seems to me that it just "seems wrong" to them so they do not really TRY to understand it either; you have to have concept that this could be it before you are going to read 100 pages of forum posts, and you can't understand it unless you really take some time with the research.

I tis OK Dr Dake can't treat everyone anyway so it is lucky 1000 people don't want to do this yet, we need to clone him!!

I think getting tested is a pretty harmless thing to do (if you have insurance) I am not sure about the surgery yet though, that is a big decision.

Marie - I can't remember if I answered the poll

I think there are five of us at Stanford
Jeff, you, Peekaboo, Chris, and me

It's going to be six very soon if Ohio State does not get on the ball!!

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Loobie -

Ya, CU Medical Center (University Hospital) hasn't responded either. I will keep trying - it is important to get the message out here in Colorado since we have such a high incidence of MS.

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Packing all my cooling implements and heading down the coast to the good old bay area. Add me to the list Going to Stanford... Cheers Mark

I need a chart to keep track of who's going where when -- Good luck to everyone!
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Mark - when are you scheduled?

I think you are right about how many so far Jeff (the 5th) me (the 18th) pkboo, Chris and you....and now Mark. Four more until enough for the paper if he stays with an earlier comment to publish 10 or 11 results.

think getting tested is a pretty harmless thing to do (if you have insurance) I am not sure about the surgery yet though, that is a big decision

A person can sure sit on their MRV results and think it over no reason why not. I think a lot of people get an MRI of their knee then think that over too before jumping in.

If an MRV looked like the twisted vein at the bottom of Dr Zamboni's dec 08 paper though, I think that'd be pretty important to a person's decision...

As it is before we have certain acceptance by the neuro community and before a person has even had an MRV or anything, it is all a really vague concept that is kind of theoretical and it feels like a too big committment to go along with it.

I already had dopplers so it has crossed from theory to reality in my body. I want the thing fixed, thank God for Dr Dake! it is a different mental place.

Sharon, June 29th and 30th is my scheduled appointment. Cheers Mark

Marie -

Four more until enough for the paper if he stays with an earlier comment to publish 10 or 11 results.

Possibly another MSer from Colorado - she was really interersted in the research - she is not a member of the ThisisMS, but I bet she is now lurking around this forum after I sent her the links.

I would like my brother to make the trip, but he has a problem with the MRI's - he has metal flecks around his eyes - he has MS but has never had a brain MRI. Dr. Dake was interested in getting him to California - maybe I need to give my brother a nice sisterly "push"!

Ahh, and I forgot that my friend is going too... June 5 or so if I remember right That gets him pretty close!