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Posted: Wed Jun 10, 2009 6:30 pm
by akaheather
Has anyone heard from Cure? (I hope no news is good news.)
Heather
Posted: Fri Jun 12, 2009 4:25 am
by CureOrBust
akaheather wrote:Has anyone heard from Cure? (I hope no news is good news.)
Thanks for asking heather, I have been a bit busy with work the last couple of days, so I have not posted.
I also did not post as I was let down a little by the radiologist and the neurologist, as the neurologist only requested an MRV of the head; and as such would miss where all the "action" is most likely to be happening (and all the images below start to fade
).
Just for reference, I did get some interesting photos, which can be made to play like a video, so you see your head rotate in two different planes. ie if they had done the full area down to my diaphragm, i can see how it should be fairly easy to spot an irregularity. If anything, the resolution on the CD they gave me is not that high. I have included the images (although probably worthless for diagnosis, for peoples curiosity)
Here are 4 selected images (there are lots more, each at slightly rotated angles):
Side On
Front on (really does not do justice to my high cheekbones, but I can see the similarities)
Side On
Front on
I am planning on emailing Dr Dake, letting him know what's happened, and if he is still interested I will send him a copy of the whole disk. I will also be contacting the neuro to see if I can get it done again, but properly. I was kind of expecting them to miss something, just not miss doing it to my diaphragm.
Posted: Fri Jun 12, 2009 5:31 am
by Sharon
Cure - what a tangled mess of webs you have
(just kidding). How disappointing that you did not get the imaging done which you wanted. Hopefully, Dake will be able to help you out.
Posted: Fri Jun 12, 2009 5:55 am
by peekaboo
Your doppler looks quite different than mine....I had no spaghetti but just 2 veins in the rear of my head shaped like goggles and then of course the jugs...the contrast between black & white was much clearer...no mist
(maybe i'm missing some brain cells
)
Azygos problems for me was found in the floroscope during surgery...
Posted: Fri Jun 12, 2009 6:31 am
by mrhodes40
cheekbones
I keep trying to get them to do my MRI MRV's from my better side too..no dice
It looks different than mine as well. Mine seemed to have more of a deep vein view the bigger deeper veins and not so much of the nework on the skin which appears to be what is going on in your maybe? I do not know anything at all about this subject at all but mine looked more like this
http://www.neurologyindia.com/getarticl ... _275_11074
On yours the jugs a look almost like a shadow instead of lighted up big and clear? I will be interested to hear What Dr D says about it
How was the IV part?
Posted: Fri Jun 12, 2009 6:44 am
by peekaboo
Maire's pics (bottom 2) Looked like mine too...I am a MS copy cat
Posted: Fri Jun 12, 2009 6:50 am
by cheerleader
Cure, you handsome devil!
your pics look like the superficial/facial veins....Jeff's looked like the pics Marie linked to- only showed the major internal veins.
Dang!!!! Hope you can get some info out of these. They're certainly suitable for framing!
cheer
Posted: Fri Jun 12, 2009 6:54 am
by mrhodes40
Maybe its a timing thing like they took the pictures a moment too soon before the bigger internal veins were lighted up. It is a lot different looking though.
Posted: Fri Jun 12, 2009 6:56 am
by mrhodes40
BTW Cure you are having to work way too hard for this, I am really bummed for you
geez...........
Posted: Fri Jun 12, 2009 7:22 am
by chrishasms
123
Posted: Fri Jun 12, 2009 8:01 am
by whyRwehere
I'm just guessing, but I think they weren't focused deep enough.
Posted: Fri Jun 12, 2009 8:35 am
by peekaboo
my thoughts exactly...maybe a higher strength 7 tesla?
Posted: Fri Jun 12, 2009 8:37 am
by mrhodes40
ANd this maybe goes to show how variable these things are. We lay people think of these tests as very black and white: get an MRV see what you need to. Get a doppler and see if you have blockages.
It is clearly more complicated than that...
I guess that's why MRI technicians go to school for a few years........ Dr Dake was pretty involved with Jeff's MRV and he had just given an inservice to the staff when I got mine to explain what was up and exactly what he needed. There was a whole gang in the dark screen room talking and discussing mine when I headed out of the tube.
Posted: Fri Jun 12, 2009 9:27 am
by Sharon
Marie wrote:
when I got mine to explain what was up and exactly what he needed. There was a whole gang in the dark screen room talking and discussing mine when I headed out of the tube.
When I was in the tube, there were different voices talking to me - I thought this was odd because there was just the technician and me when I went in. Well, as I had posted before - the technician was wondering what was going on - he said there have been more doctors in here telling me what to do (I had my MRI/MRV at the Blake Wilbur clinic - Jeff, Marie, and Holly had theirs at the main hospital). He told me that was why I heard the different voices, they were all wanting more and more images - I guess they kind of invaded the technicians space!
Posted: Fri Jun 12, 2009 9:35 am
by whyRwehere
this is about MRIs, but it's worth reading to get an idea of what one might encounter with different technologists...
http://www.boston.com/news/education/hi ... an/?page=1