Posted: Mon May 25, 2009 11:40 am
Quickly, I have to go to bed saw my regular doc this morning I am having a little complication in that I have a hematoma in my abdomen so I have to rest it out, it is painful and a side effect of the angiocath, but sitting is not good for it. So one little post then off to rest.
Did I mention this is real surgery?--oh yeah, like many times
Yes my headache and neck ache are a lot better, still there off and on but mostly gone. no heat sensitivity and better temperature regulation. My weak right foot can dorsiflex a little bit and I can bend my knee a tiny bit. They are often completely immobile no matter how hard I try
I had my first bood recheck of the coags this morning I LOVE my primary care doc who checked me out and gave me the scoop on everything she couldn't wait to hear my whole story about the trip and what is going on etc. She is all in for this. SHe said "I read that paper and I was like OMG this is IT" She believes though that autoimmunity is probably a secondary effect, probably associated, in her mind, with cryptic bacteria (her specialty)...but that it will clear up when treated. We are very sympatico and excited by all this new stuff.
As for doctor stuff, she said the abdominal thing will just take time to resolve, the stents will take care and we will be doing coags every week, she believes that I should expect 6 weeks before I will be back to normal and can start saying that i am over the surgical event and we can see what is what
off to rest
mrie
To answer some questions:
no pull ups, probably a catheter they go right in at the pubic bone and you get a racy shave.....
heat sensitivity is way down going in the shower--I like it hot --is the same as coming out !!!
We talked the whole way home about buying a new Honda Element and going fishing in the mountains, we have not talked like that for years; there just was no point. feels good.
Coach I agree with Cheer no shortcuts. You have to self advocate and can't do it if you are not able to know it inside and out. Really let's be honest....the big thread is 50 pages, I KNOW we'd all read a book that big about it, and the thread is full of posts you can skip. I've mined it several times it is not that bad. So start with the research then go through that thread then decide what of the other threads interest you. In a week you'll be up to speed and deciding if this is interesteing to you or not.
off to rest guys see ya...
marie
Did I mention this is real surgery?--oh yeah, like many times
Yes my headache and neck ache are a lot better, still there off and on but mostly gone. no heat sensitivity and better temperature regulation. My weak right foot can dorsiflex a little bit and I can bend my knee a tiny bit. They are often completely immobile no matter how hard I try
I had my first bood recheck of the coags this morning I LOVE my primary care doc who checked me out and gave me the scoop on everything she couldn't wait to hear my whole story about the trip and what is going on etc. She is all in for this. SHe said "I read that paper and I was like OMG this is IT" She believes though that autoimmunity is probably a secondary effect, probably associated, in her mind, with cryptic bacteria (her specialty)...but that it will clear up when treated. We are very sympatico and excited by all this new stuff.
As for doctor stuff, she said the abdominal thing will just take time to resolve, the stents will take care and we will be doing coags every week, she believes that I should expect 6 weeks before I will be back to normal and can start saying that i am over the surgical event and we can see what is what
off to rest
mrie
To answer some questions:
no pull ups, probably a catheter they go right in at the pubic bone and you get a racy shave.....
heat sensitivity is way down going in the shower--I like it hot --is the same as coming out !!!
We talked the whole way home about buying a new Honda Element and going fishing in the mountains, we have not talked like that for years; there just was no point. feels good.
Coach I agree with Cheer no shortcuts. You have to self advocate and can't do it if you are not able to know it inside and out. Really let's be honest....the big thread is 50 pages, I KNOW we'd all read a book that big about it, and the thread is full of posts you can skip. I've mined it several times it is not that bad. So start with the research then go through that thread then decide what of the other threads interest you. In a week you'll be up to speed and deciding if this is interesteing to you or not.
off to rest guys see ya...
marie