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Posted: Tue Sep 08, 2009 10:43 pm
by ErikaSlovakia
catfreak wrote:For those who did not like the new spider avatar. He is a new one!
Cat
Hi Cat/Spider!
I have to lough so much about your idea with the avatar!
Erika
Posted: Wed Sep 09, 2009 6:58 am
by catfreak
Hi Erika!
I was just trying to relate my avatar with my experience with the "Arachnoid Tissue Cyst".
If I could have found a spidercat I would have used that.
Good luck with all your endeavors. I am thinking about you a lot!
Cat
Posted: Wed Sep 09, 2009 7:18 am
by zap
or
Posted: Wed Sep 09, 2009 7:46 am
by catfreak
wow
Posted: Wed Sep 09, 2009 10:24 am
by wobbly
Posted: Wed Sep 09, 2009 12:16 pm
by mrhodes40
Bless you wobbly, glad to see you!!!!
You do get a second treatment? they agreed? can you talk now like Gici can or not yet for your group?
i dont no
Posted: Thu Sep 10, 2009 12:52 pm
by wobbly
if i should talk or not seems like the cat is out of the bag/ who is ceci/ i no nothing abt a 2nd treatment/ marie u STAY STRONG
Posted: Wed Sep 16, 2009 8:43 am
by MaggieMae
MaggieMae wrote:MaggieMae wrote:Could we have a current update from all who went (or are going) to Stanford? Jamie, Loobie, Cheer seem to keep us informed. But, I'm wondering about the rest that we haven't heard from in awhile. Are they seeing any differences? I can't keep track of everyone.
The names I can remember:
Mel (Jamie)
Lew (Loobie)
Jeff (Cheerleader or Jeff w MS)
Marie (MRhodes40)
Alex Gibbs (Gibbledygook)
Sharon (Sharon)
Holly (Peekaboo)
Mark (Skydog)
Randi (Arcee)
Daisyduck
Sharon (LadyStewart)
Mark (CureIous)
James (Skydog's friend)
Mary (Sharon's friend)
Cindi (Catfreak)
Steve (Mormiles)
Sharon's daughter (Sharon)
Co-worker's wife (Mel/Jamie)
Coach
Kate (Katelayne)
Blake (Greenwave)
Tracy (Questor)
Sport
Rokkit (10/6/09)
Heather (akaheather) 10/8/09
Erin (Loobie's friend) 10/8/09
Rose (Rose2) 10/19/09
Rhonda (Magoo) 10/16/09
Samish 11/09
Zap - 12/07/09
Prof8 - 12/09
Chris (chrishasms) 1/10
Please correct me if I'm wrong on any of these and I will edit.
I'm bumping this up because this list has been updated numerous times, but is getting lost in all the postings.
Just to let you all know I keep updating when I hear someone new is having procedure.
Posted: Thu Sep 17, 2009 3:26 pm
by Arcee
Hi All -
I had my follow-up appointment in Boston today and am thinking I should post here rather than in my original thread.
The brief back story: stentee #15 on July 15th when I moved from digital cable to HD, continued positive post-surgery experiences, and Dr. Dake arranged for a doctor he respects here to oversee the MRV and MRI and share the results with me.
Good news! All appears to be fine with my stent. Dr. Dake is going to do a double check on the pics and reports, but it's looking like I am off the Coumadin. (insert emoticon for extreme relief) I will be going back to Stanford for my first anniversary follow up next July.
I have some other comments to make about CCSVI in Boston, but I am going to start a separate thread as I know we are trying to preserve the integrity of the log.
- Randi
Posted: Thu Sep 17, 2009 9:08 pm
by prof8
I haven't gone yet. Have my appointment in December.
Posted: Mon Sep 28, 2009 10:55 am
by MaggieMae
Bump. I added Sport
Posted: Mon Sep 28, 2009 11:00 am
by zap
I'm actually meeting Dake on the 7th, possible surgery on the 8th - noticed you have me down for the 9th.
Posted: Thu Oct 01, 2009 5:31 am
by MaggieMae
Bump - I added Magoo and Rose 2
Posted: Wed Oct 07, 2009 5:37 am
by MaggieMae
Bump - Just added Samish to the list of people treated or going to be treated at Stanford (that I know of). Wish there was somewhere to post this list so that it could be updated easily and kept where all could see.
Posted: Wed Oct 07, 2009 5:42 am
by LR1234
Maggie there is the new tracking for CCSVI patients (with no comments other than the patients experiences) Maybe via this thread we can encourage those on the list to write on the tracking thread.
