Page 2 of 3
Posted: Tue Jun 09, 2009 6:09 am
by Sharon
Cure found the following:
Quote:
09.45-11.00
Prince Pierre Chronic Cerebro - Spinal Venous Insufficiency (CCSVI)
Chairperson: P. Zamboni
P Zamboni: Chronic Cerebro - Spinal Venous Insufficiency (CCSVI):
a new vascular picture
M. Simka Poland: The link between venous and immune system
B. Weinstock Guttman: CCSVI and Multiple Sclerosis
R. Galeotti: Endovascular treatment of CCSVI: technique and results
F. Salvi: Endovascular treatment of CCSVI: clinical results on associated
multiple sclerosis
From XVIth WORLD MEETING OF THE INTERNATIONAL uni0n OF PHLEBOLOGY
Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist
Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital
Can we connect the dots between her and Wobbly?
So, we finally have a neurologist from the US that is publicly speaking about MS and CCSVI! Yipee!!
Gee, I wish someone could be at that meeting - wouldn't it be interesting?
Sharon
Posted: Tue Jun 09, 2009 6:25 am
by cheerleader
Who wants to go to Monaco the end of August??? Hmmm...never thought I'd want to go to a phlebology conference, but this one looks pretty good
and near the south of France. Any volunteers?
cheer
Posted: Tue Jun 09, 2009 6:27 am
by Loobie
I will "take one for the team" IF you all pay for it. I promise to write a real comprehensive report
Posted: Tue Jun 09, 2009 6:33 am
by Sharon
I had also emailed the information to a well-known neurologist who happens to also be a friend (but, who was skeptical when I told him I was going to Stanford). I sent him an email after I came home to let him know what my test results were and about the procedure. He did not respond too enthusiasically. Yesteryday, I emailed the symposium information--- I guess he became interested - received an email from him this morning - he is contacting his colleague and friend Dr. Guttman. Hey, the way I look at it ---- one convert at a time is a good thing---at least we are moving forward.
Sharon
yes
Posted: Tue Jun 09, 2009 6:34 am
by wobbly
Posted: Tue Jun 09, 2009 6:47 am
by peekaboo
sharon wrote:
one convert at a time is a good thing---at least we are moving forward
before we know it hopefully one convert will snowball to many more
Posted: Tue Jun 09, 2009 6:51 am
by javaneen
[/quote]
Bianca Weinstock Guttman, who will be a speaker, is a MS neurologist
Dr. Bianca Weinstock-Guttman
Neurology
Buffalo General Hospital
Here is a link to some of the work done by Bianca Weinstock Guttman
http://deptdirectory.med.buffalo.edu/pr ... =0F70L4CY1
I don' t see anything about CCSVI in there.
Re: yes
Posted: Tue Jun 09, 2009 6:51 am
by IHateMS
How do you know that your improvements are from CCSVI and not Tysabri? Just curious.
Posted: Tue Jun 09, 2009 7:09 am
by chrishasms
123
not
Posted: Tue Jun 09, 2009 7:34 am
by wobbly
sure but i don t feel any benefits r from TY that seemed 2 be holding me steady/ heat improvement was def the italy deal and way better in head things just alot clearer/ could it b combo of both who no s / THIS PROCEDURE IS THE REAL DEAL ---THAT IS MY TAKE--PEACE
Posted: Tue Jun 09, 2009 8:37 am
by chrishasms
123
Posted: Tue Jun 09, 2009 9:06 am
by mrhodes40
I plan to stay on copaxone for at least a while too.....
Posted: Tue Jun 09, 2009 4:22 pm
by Sharon
javaneen
You are correct, there is nothing about Guttman and CCSVI. We have no idea how long she has been working on this. I would imagine she will be publishing a report at or about the time of the symposium.
Posted: Wed Jun 10, 2009 5:59 am
by notasperfectasyou
mrhodes40 wrote:I plan to stay on copaxone for at least a while too.....
DO you get the 5 minute bee sting?
Posted: Wed Jun 10, 2009 6:26 am
by mrhodes40
yep... Cop also controls my RA and the other drugs for that are not so nice so that is a good reason to keep on it. I'd have stopped taking it some time ago if not for that aspect.