I talked to my Dr about CCSVI
Posted: Wed Jun 24, 2009 7:42 pm
I had my MRI, Tysabri and saw my Neuro on Monday. No new lesions and no change in MRI. (yeah)
I asked if he had heard about the research being done with CCSVI. He said he had and it sounded very exciting. He said it was great the some docs were thinking out side the box and looking at stuff like the venous issues. He even showed me on a brain poster hanging on the wall the venous structure in the skull and tried to explain some things to me but I was lost. He said it was very very promising research. I told him I knew of some that were already getting the stints put in and it really seemed to be improving their quality of life. He seemed to think it would have to improve many things going on with MS. He believes the research will not just benefit MS patients but other disorders as well.
I go back in 3 months and may take some materials with me. When will Zamboni be published? Is Dr Dake going to publish his research?
Who all has been and had surgery and who is signed up to go?
Cat
I asked if he had heard about the research being done with CCSVI. He said he had and it sounded very exciting. He said it was great the some docs were thinking out side the box and looking at stuff like the venous issues. He even showed me on a brain poster hanging on the wall the venous structure in the skull and tried to explain some things to me but I was lost. He said it was very very promising research. I told him I knew of some that were already getting the stints put in and it really seemed to be improving their quality of life. He seemed to think it would have to improve many things going on with MS. He believes the research will not just benefit MS patients but other disorders as well.
I go back in 3 months and may take some materials with me. When will Zamboni be published? Is Dr Dake going to publish his research?
Who all has been and had surgery and who is signed up to go?
Cat