This Is MS Multiple Sclerosis Knowledge & Support Community

Jamie wrote:Saturday morning, Mel is up at 9:30.

Full week at work and went to bed last night at 11 with no nap.
Awesome.

I'm not is such good form, heavy session yesterday and I'm in trouble today

Ha! I'm the more tired one in the family now, too, Jamie! I call Jeff the energizer bunny. He's making up for lost years. Give Mel a hug for us, and YOU take a nap today
cheer

Also, and this is HUGE.

Yesterday I got a major blow out on my tyre, I have a Range Rover so its really hard to change on your own, the wheel weighs like 60lbs!

Mel came to where I was in 100 degree heat, and because I'm a girly man it really ended up me helping her.

We got the wheel on and got home and it hit me, she never in a million years would have been able to do that last month.

She didn't get any double vision or fatigue and is bright as a button today.

Something like that would have knocked her out for two days BD*.





*Before Dake.

Jamie wrote:*Before Dake.

That's one for the books right there

I was hoping it would catch on!

Well in a weird way, it was a good thing getting the flat tire...It was a good test for Mel and proof of recovery. I hope this is just the begging fro her.

Jamie I so love to read your thoughtful posts with such great events being detailed . Changing a tire in the heat is an amazing, really amazing thing.

I am so happy for both of you!! keep the good posts coming I love to read them.

Once I have had my stents/balloon angioplasty done (I will def get it done somewhere before the year is out) .

If it doesn't stop the progression it is good to know that Mel has had some success with Revimmune as well. It just makes you feel better to know there are options out there.

Absolutely.

Update:

Still doing great, went on the treadmill for 30 mins last night for the first time in years.

Fatigue, brain fog, depression all completely gone.

Long may it continue.

Spasticity on left side gone, left side tingling gone, left eye back to normal vision.

WOW very encouraging

Mel's on the treadmill again after getting to work at 7am.......

Let me know if these giddy updates are annoying people and I'll desist.

(Or at least do it via PM!)

Please do not desist.

Rokkit

carry on! (The good news and the bad, but thankfully it seems all good!!)

30 mins last night for the first time in years.

if I remember right, Mel had hicy last year just about a year ago, so this means that she did not have this response after that treatment?

Please post what you see and especially things like this that are measurable. I think we can all agree that something like this is very unlikely to be any kind of "placebo", particularly when a significant procedure was done just last year without this same effect.

really encouraging!

I also think it's important to note the Mel had complete immune ablation with Revimmune....and yet she still had major issues with her jugulars: her left had an equal size collateral and her right was occluded. We are seeing venous abnormalities in folks that have been on interferons, tysabri, copaxone, etc. It's across the board, and immune modulating/ablating treatments do not affect whether or not someone has CCSVI.

Keep posting, Jamie. We love it (maybe get Mel to come on and say hi) and don't forget to sign in the CCSVI patient's log if you haven't yet.
cheer

Need to find this answer quickly and I tried to use the search but wasn't having much success. I'm trying to reschedule my husband's MRV and the hospital just said they have never done an MRV of the neck. Should that be with or without contrast?