Posted: Tue Sep 08, 2009 7:01 am
Not read this yet or the reviews
Going to get myself a cup of coffee and enjoy it!
Going to get myself a cup of coffee and enjoy it!
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He will give proof tomorrow that there is plasticity and remyelination in the CNS and the Liberation procedure have proven to activate remyelination in the CNS as shown by MRI.
“Yes!!!” stated Dr. Salvi...”no one is lost!!” (editorial comment....his face lit up as he spoke these words.)
This is one reason that Dr Dake needs a successful sonographer to do his dopplers. He can't test the DCV -deep cerebral veins-- right now and does not have confirmation that people have turbulence free flow in that area. For example, I know he left some stenosis on one side on me, might there still be some turbulent flow? I am not anxious for a revision and I hope that the fact my collaterals disappeared means that by and large my circulation is good and I'll be OK, but these details will not all be clarified for a while.he wants to articulate again that flow is more important than stenosis- especially as a preliminary diagnostic tool.
no, not exactly, guys from the swiss/kiwi/german/french/italian ccsvi-forum have posted here before. one interesting thing is that there will be (a rather short) presentation of Zamboni et al.'s finding at the annual ECTRISM-meeting in Duesseldorf on Sept. 10. ECTRISM is the "European Committee for the Treatment and Research in Multiple Sclerosis", the largest body of research on MS in Europe. It is in general pretty industry related (and -sponsored) but at least they are not totally denying ccsvi.IHateMS wrote:thanks for the info. any news organizations there?
Mixed feeling about this, seems to be less optimistic for progressive MS?In all these patients also cognitive and motor activities – assessed by means of an outcome measure called MSFC - are significantly and persistently improved while the same is not true for patients with the progressive forms of the disease. In the latter, however, progression was stopped and the patients’ quality of life improved.
mrhodes40 wrote:I hope you get a little more on the aspect regarding the blood flow.
This is one reason that Dr Dake needs a successful sonographer to do his dopplers. He can't test the DCV -deep cerebral veins-- right now and does not have confirmation that people have turbulence free flow in that area. For example, I know he left some stenosis on one side on me, might there still be some turbulent flow? I am not anxious for a revision and I hope that the fact my collaterals disappeared means that by and large my circulation is good and I'll be OK, but these details will not all be clarified for a while.he wants to articulate again that flow is more important than stenosis- especially as a preliminary diagnostic tool.
marie
OK, and now for what I was going to write!! This is the huge thing for me. Being one of the ones that hasn't seemed to respond to this, it makes me yearn for that type of test. Anyone up for a trip to Italy? I'm going to cover this big time with Dake next week. I really want to spend some time discussing why we aren't doing these tests and see what we CAN do in regards to measuring flow. I feel that the stents placed in me have done nothing to date but put my shoulder out of joint. I got a glimpse, but that feels gone now, because I'm sure the one side the stents were put on had some better flow, but if people are seeing results and I'm not then I have to try and question why. My hope is that what he may have learned he can apply to me. To date, I've had a couple of really, really good days that I don't feel I'd have been capable of before, but something is still going on for sure. Don't know what and don't feel like I'm relapsing (knock on wood), but whatever helped for those few days went bye bye.Loobie wrote:mrhodes40 wrote:I hope you get a little more on the aspect regarding the blood flow.
This is one reason that Dr Dake needs a successful sonographer to do his dopplers. He can't test the DCV -deep cerebral veins-- right now and does not have confirmation that people have turbulence free flow in that area. For example, I know he left some stenosis on one side on me, might there still be some turbulent flow? I am not anxious for a revision and I hope that the fact my collaterals disappeared means that by and large my circulation is good and I'll be OK, but these details will not all be clarified for a while.he wants to articulate again that flow is more important than stenosis- especially as a preliminary diagnostic tool.
marie
As far as I can see this means that different approaches & researches are summarized under a certain topic, here "disease modifying therapy - general". There's 13 papers to be presented under a common flag, which means that everyone has about 7 minutes to detail their findings. Anyway - it's a start. CCSVI has been totally neglected by the medicine-establishment in Germany until now. An "expert" on one of the leading industry-sponsored ms-forums dismissed it as beeing fairly ungrounded & exotic. Industry resistance will of course continue to pose a major obstacle for treatment according to Zamboni, Dake & Schelling.MaggieMae wrote:Says it is a "poster topic". What exactly does that mean. No presentation, just written material?
Hey all - Dr. D. is talking about my daughter. I will catch up later - I am off to ChinaDr. Dake then stated that he had also tested a relative of a confirmed MS patient. A woman who had not been diagnosed with MS, but who presented at Stanford with jugular occlusion and a variety of neurological deficits, yet no official MS diagnosis. She also showed lesion activity on an MRI, and he stented he occlusion the day before he flew to Bologna.